Posts Tagged ‘Mom’

I Am Blown Away!!!

June 29, 2014

This is my 257th blog post – with 4 drafts – and what is more amazing are the 102 followers I now have.  That is so amazing!  I was so pleased with 25 followers and now it is 4 times that amount.   I am very grateful for all of my followers, I appreciate the comments and to know there are people who are interested in my blog.

On the slight downside, I was getting a lot more spam, but I know they just want me to approve their comment so it will show up in better stats for them.  It all gets deleted, so they have wasted all that time and energy for nothing.  Recently it has slowed down to only a few at a time – I am not interested in house appraisals and inspections in Maryland, any more than all the ones from people selling cars.  Give me a break!  I don’t write anything about any of those.

As I look back over all the posts since February 2010, I started out with mostly writing about RA; then wrote at times about Ike Pono and what I was learning about myself.  Later on I wrote about my Mom and dealing with dementia and about some things going on that have nothing to do with any of the other things.   Yet, all of it affects RA and my state of mind; how can it not?  I also have learned that it is important to find the funny side of things – if I don’t laugh about it, I go nuts.

I started thinking about all the years I have had RA, all the drugs, tests, studies, procedures I have had.  When I am in the situation, odd thoughts come to me that are a bit funny.  It isn’t as though I sat there and said to myself “What’s funny here? or what does this remind me of in the past?”.   Things just came to me.  The times I have been in the hospital, I would keep a pad with me to write down my experiences.  I wrote a journal for several years and I had requests to be put on my list to send it to them.  I realized that writing helps clear things out, help me see things a bit more clearly and there is something that compels me to write things down.

Before I came back to Seattle to live, I traveled a lot with my husband and also by myself.  I would keep my journal going and at one point, I started recording it on a cassette tape.  I found someone to type those tapes out for me – when I read the typed piece, I realized I had left out things.  I may have been a little more conscious of editing because I knew someone else would see it.  People used to tell me I had such an interesting life – reading my journals didn’t have the times of pain, depression, frustration, etc. I had at the time.  I didn’t whinge because I was tired enough of it myself, I didn’t want to write about it.  Besides, who wants to read that?

When I started this blog, one thing that was important to me was not to whinge (moan and complain) because I wanted this to be a positive blog.  I’ve read other RA blogs and they tend to talk more about how they are feeling, what isn’t working, what is – I wanted to have more ideas and solutions.  I know this kind of blogs work for some and I am glad they do.  It’s just me.  I started with the Connecticut Chapter of the Arthritis Foundation doing a support group.  When I was having problems, it was good to have other people understand.  But it felt too focused on me and how I felt, I wanted to do more with people and turn outward than continually inward.

I was asked to be the Speaker’s Bureau Coordinator and later a Self Help Course  instructor and trainer.  I really enjoyed those because I interacted with people, found confidence in speaking before people and seeing something positive happening.  I usually talked about the basic fact of Arthritis – like all things, it was personal rather than just cut and dried facts.  When there wasn’t a lot of time, my stories were the first to go.  I received so much positive feedback and it made me feel so good when someone told me I had helped them so much.  I had felt things were just negative about having RA, here was such an opposite view that surprised and pleased me.

It has not only been with the Arthritis Foundation this has happened.  I have had several people tell me I am their hero.  WOW!  I was and am just being me, yet something spoke to them.  I often wonder how many  I have helped and will never know about it – but I have decided it doesn’t matter, I’m not supposed to know.  I think we all inspire people as we go along our daily life without knowing it.  To me, that is when we are most effective.  I used to think if somebody didn’t mention it, no one noticed what was happening.  But I would remember how many times I noticed something but didn’t say anything to the person.

So, to all my followers, you are the best and I truly appreciate each and every one of you.

A Short Reunion

June 24, 2014

As a result of my slide, I have become reacquainted with my cane.  It took a little practice, but I’m doing pretty well, not tripping over it so much.  It has been hard to walk since Friday afternoon and the cane has helped.  It was not my fondest wish to have this reunion, on the other hand, I am glad the cane is there.  I have had it in my car trunk for the past two years, occasionally I use it if I am not sure of the  of the terrain or if there will be a lot of people.

Black_Cane_T_HandleIt’s not a fancy cane, I bought it at Rite Aid for not too much.  I made sure it was adjustable and during out-patient rehab I asked the therapist how to measure to make sure it is the right height.

I haven’t done a lot of exercising, though Saturday I  went in a couple of places.  I was tired when we came home, so I had a lie down.  Eddie wanted to walk by the river in Renton so he could check out the flight line for the 737’s – I was quite happy sitting in the car reading.  Then we went to Panera for coffee, about the extent of walking.  Yesterday I went to see Cheryl, my chiropractor.  I explained what happened and how it had been feeling, so she worked on different places that connect with the knees.   I had an Apple One To One at 11 to work on my book.  I seem to have found something that seems to stump them a bit.  Both Larry and I learned a lot about iBooks Author – says he likes a challenge.  I told him I was ready to forget the whole thing because it has driven me crazy – but I am not about to let technology win.  I decided to go home, have something to eat and have a lie down – sometimes it is smart to do that after an adjustment.  I am glad I did because I was a bit more tired than I realized.

open-uri20121111-14623-cpbpvv

One of the aspects of  RA and pain is how varied it is – with this situation at the moment, the pain has been different every day.  Friday it was sharp pain in the outside of my knee, yet Saturday it felt as if I had a tight clamp below my knee.  Sunday the clamp was in the middle of the knee and at times there was a sharper pain in the middle of the knee.  Yesterday the clamp was around the knee and today the clamp is mostly gone but the outside of the knee feels as if someone is hitting my knee each time I bend it.  That is one thing that really baffles me about RA – it is never the same from one day to the next.

Today is doctor morning, I am going to see my primary doc for a check up – he has been pleased with my progress, but not sure what he will say about this latest incident.  I don’t plan to do any “running around”, just buy some cookies for Mom for tomorrow.  She was alert and doing well last Friday, though I noticed she was in the wheel chair.  Apparently her knee was bothering her, so they use the chair.  Otherwise they make sure she uses the walker so she won’t forget how to walk.

LATER

I saw the doc and he was pleased with me – not necessarily the slide but my blood work, blood pressure, etc.  Unfortunately he weighed me and I am 15 pounds heavier – Ye God’s and Little Fishes!!!!  I suddenly realized the weight gain a week or two ago – I can’t believe I let it happen so easily.  I have spent a lot of the last few months  working a lot at the computer and not getting very much exercise; now the knee as well.  Yet I have noticed I don’t eat as much because I get full much faster and I opt for fruit for dessert at night.

I went to the store for Mom’s double stuffed Oreos and came home – I am noticing my knee is now on the side, a little below the joint and it feels like badly bruised bones.  Cheryl always says it takes some time for the body to integrate whatever happens and the next day may be uncomfortable.  I have an open house at Breakfast Club – I am hoping things will be more comfortable in the morning.  Afterward I will go see Mom.  This is not the time to put up a facade of “I’m doing fine” because I’m not.  It has worn me out and I am dragged out tired and not always sleeping well; I have trouble finding a comfortable position at night and walking is not particularly comfortable either.

I know I will come through this eventually and be more comfortable – it gets old very quickly to be hampered like this.  I have a quiet week and don’t have much on the calendar because I know rest is important.  I dealt with many other times like this one, though it doesn’t get easier and I haven’t “gotten used to it” either.   However, it doesn’t last forever, just often feels as if it does.

THIS TOO WILL PASS.

No Pictures, Just Me

June 15, 2014

I’m not sure what to call this post, seems mostly a round-up of what I have been doing this last week.  It turned out to be a busy week and at the end of each day I was beat.  Monday I went to see my chiropractor in the morning – I had been carrying rocks again Friday.  Fortunately there were very many consequences but it was god to have an adjustment nonetheless.  Then I had an Apple appointment at noon to work on my book in iBooks Author.  It has driven me crazy because I can’t figure out some of it – such as how to put my Pages copy into the format and have it work properly.  The bottom line, I have to do more copy and paste.

Even Katie, the tech, was having trouble getting it to work; I didn’t feel like so clueless after that.  Apparently the app hasn’t been updated for 2 years and I am not the only one having trouble getting it to work properly.  I will have to write to Apple feedback and tell them what is happening.  Apparently they do read it and Shawn has noticed they made changes she has written about.

After that was my caregivers support group.  I didn’t have much time to get there, so I stopped at Mrs. Field’s for a brownie, not the smartest choice, just the fastest.  When Eddie asked me later what I had for lunch, I said not the best choice, a brownie.  Then he asked me if I ate it because I was upset – an unexpected question he has never asked before.  I told him I had very little time and it was the quickest thing I could think to do.

We had a large group at the support meeting, some for the first time.  One of the advantages of having been there for a while, I am more calm when talking about Mom than I have been.  there are still times when I need support and I am so glad to have these friends there for me.  I have also been able share my experiences and resources to others who are beginning the journey.  That feels good to be able to do that – I don’t know the outcome usually, but it is not always necessary.

Tuesday I didn’t visit with Mom because I went up north with Eddie for the day.  Tuesday was the day we decided for my Queen’s Birthday.  We stopped for breakfast and I spent some time in “my office” – otherwise known as the balcony – reading until I was ready to leave.  Things are different at the Future of Flight since the coming of the new Exec Director, so I wanted make sure did what worked for Eddie.  I left and spent time in Hobby Lobby and also Pacific Fabrics before meeting the other women at the restaurant.  It felt good to sit down.

I was about half an hour early, so I found a spot and read until I saw Joyce come.  We went in together and sat at a table waiting for Char and Lois.  They came fairly soon after that and we had a lovely time.   Char brought me a chocolate bar with a card and Joyce brought a card.  We have been just doing cards lately – at this point there seem to be a lot of funny cards about older women.  Yikes!  That’s me now!

Afterwards, Char and I went to Half Priced Books to look around, then it was time for me to meet Eddie.  I told him I would wait for him in the car until he was ready – seemed to work out well.   We left at about 3, but it was 6 before we finally arrived home.  There had been an accident in the tunnel and the Viaduct was closed – you can imagine what that did to traffic.  We took I-5 to 85th and then went over to 99 – but the traffic was backed up quite a way.  Everyone was trying to find a way around the tunnel and the Viaduct – not all that easy.  We decided to go through town, just as everyone else did.  We were on 5th and suddenly the Monorail went right overhead, never been under it like that before.  It happened several times so that shows how slow we were inching our way.

Finally we found the traffic opening up a bit, so we decided to go down Airport Way – that was so much better – it was good most of the way home.  We were beat and had a light dinner – I slept so well that night that I didn’t want to get up at 5 the next morning.  But it was Breakfast Club morning and I enjoy going there.  The last 3 or 4 weeks, Eddie has been going later because the historian Mike has been away – had a knee replacement.  He is planning to come back next Wednesday.

I always enjoy being with the group, they are such good friends and colleagues.  We do have fun but we are also serious and professional about our businesses.

Afterwards I went to visit Mom, bringing cookies and chocolate.  Lately I read to her, I was finishing up one of the “The Cat Who . . . . ?” books; I brought another one on Friday to begin.  I came home shortly before Eddie did, then we went out to do some things in the afternoon.  I felt myself almost falling asleep in my chair those 3 days.

Thursday I went to the Group Training for Pages because I have been having difficulty with Eddie Round Up – the type goes small on him and he gets very frustrated with it.  I found out I need to do some adjustments before I can make it a template, then it should work properly.  I don’t think Eddie is ready for new Pages yet.  Afterwards I came home and found myself working on the book.  I had energy and enthusiasm, plus I figured out how to copy the Pages version – unfortunately only one entry at a time – so it fit in the format.  Now I need to figure out how to get the Table of Contents to behave.

While I had been at Apple, Paul and Jude cleared the house and property for me – I have to admit I didn’t feel anything different when I came home.  Wonder if the burst of energy and enthusiasm was part of it.  But that night I felt uncomfortable – no where particular, just a general uncomfortable.  I didn’t sleep very well  that night and woke up feeling crappy.  Things are better now, maybe it is going to take some time to settle down and clear out.

That’s my story and I am sticking to it.

Too Beat To Rant

May 15, 2014

I have put this in the Emotions Category, though I’m not sure I have that much energy to rant and race about dealing with Mom.  I went to see her 4 times in the last week – last Tuesday, Friday, Sunday with Eddie for Mother’s Day and yesterday.  She has a couple of meds for depression as well as to help her sleep at night.  As a result, she is  kind of sleepy a lot of the time.  When I read or bring my iPad, she tends to doze, sometimes goes to sleep.  I also notice there are times when I see her, she isn’t  willing to really have a hug.  Other times she is very glad to see me and enjoys a back rub.  Yesterday She looked at me and so I said “I am your daughter Elizabeth”.  She  then knew who I was and was happy to have me there.

It’s so hard sometimes to visit her – at times I would rather not go at all – but I never want her to think I have abandoned her.  I see this woman in the adult family home and she resembles my Mom, but she is so different.  The Mom I knew is barely there.  As this process has progressed, it seems as I grow stronger, she diminishes.  I can’t fathom what it is like for her inside, especially since every person is different.  I was at the caregivers support group on Monday and I am glad I have that to help me deal with this whole dementia thing.

I am in the process of writing 2 books simultaneously – based on the blog posts I have written about RA and dementia. Before I did any post on dementia, I had done some writing (ranting) about what was going on and how frustrated, angry and  upset I was about the situation.  I never published them on the blog and as I read them while working on the book, I was amazed at the energy and emotion I had then.  (There’s a good reason I didn’t publish them – no whinge zone).

Things are very different now.  I don’t really have the need to rant, but maybe I need to just pour out my emotions about the current situation and cry if necessary.  I don’t seem to have the energy  to be worked up any more, it is more a sadness than frustration.  Some of it may be that I have a lot of my own things – physical – that I need to clean out; I also have stuff in my head that is no longer valid and that also needs to be cleared out.

If you aren’t into woo woo, goofball and hocus pocus, you may want to quit reading.

I talked to an intuitive a couple of weeks ago about what is holding me back from selling the furniture.  She told me I have a lot of Spirits around.  She saw 2 older women baking bread, a little boy who took her and showed her the puppies and there are cats and all kinds of spirits.  She also saw my Dad – he is here waiting for mom to finish what she needs to do here.  He loves her so much – I remember many times he would say “Your mother is the most wonderful woman in the world”.  He is pleased with me and loves me – he wanted to know if it was all right that he is here.  I said “Absolutely, I’m delighted to have him here”!

She suggested I call Paul and Jude at Whispering Dragon to have them clear them out.  I had heard about them before and wondered if it would a good idea to have them come.  The next item on my list.

I wonder if part of the fatigue is bumping into all the spirits here along with RA and dealing with Mom.  I also know if I keep thinking and saying out loud about being tired, the Universe sends whatever I focus on.  Instead, I need to create more  positive thoughts and words to change to positive – I am the only one who can do it.  I like Louise Hay’s quote “It’s only a thought, and a thought can be changed”.

 

 

Happy Birthday Ellen

May 4, 2014

large

I knew Ellen’s birthday was coming up, but I have been so focused on myself that I let her birthday slip by.  I planned to do couple of things and then suddenly the time has slipped away to be on her birthday.  It will be a little late this year, but it is coming.  I have the coolest sisters and so appreciate them, they have been a great support as I have been taking care of Mom and her needs.  I wish they had been able to be here to see Mom when she had periods of recognizing her daughters.  Sometimes she knows me, sometimes I am a familiar presence.  Ellen sent more maple sugar candy for Mother’s Day, Mom really enjoys them.

Ellen has a gift for choosing just the right gift for giving, I wonder how she does it.  I remember one Christmas, she gave us a pair of the coolest scissors – I have used them for quilting, sewing and all kinds of things.  They cut so smoothly and easily, they are my favorite pair.  It was unexpected and turned out to be a wonderful choice.

Ellen is my older sister, the one I played stick horses with when we lived in Southern California.  She is 4 years older than I am but that didn’t seem to be a big gap when I was up to age 7.  First it was just a square stick with rope tied at the end for reins, then later Dad made heads for the sticks.  I called mine Scout – probably after Tonto’s Scout.  I can’t remember what Ellen named hers.  We loved them and had a wonderful time playing with them.  When we were moving up to Seattle, for some reason Dad wouldn’t let us take them.  We never quite figured out why – they weren’t all that big.  We both were upset and decided to put them behind the garage when we left.  I wonder if anyone ever found them.

She did have friends on our block more her age, but I also remember we spent a lot time together.  I am sure she remembers Betsy, hot dogs and cheese.  I remember my Dad bought Betsy – don’t ask me what year or model car she was – and he took us out for a drive.  We all sat in the front seat and we realized there were a couple of floorboards missing.  I think we went through a puddle and got splashed, but I am not sure.

I have a vague memory of a show we put on with the some of the neighborhood kids, but that’s about all.  Maybe she remembers better than I do.  There was a game called “Kick the Can” the kids played.  There was a coffee can filled with water flowers and who knows what other debris;  we went around in a circle with our eyes closed and whoever kicked the can over had to do something.  Usually it was run up to someone’s door, ring the bell and run away.  I remember only playing a couple of times.

When moved up here to Seattle, suddenly Ellen seemed so much older.  We went to Madrona grade school about 2 months before the year ended – I was in 2nd grade and she was in 5th grade.   I had gone to school a year early, so I was 3 grades behind her rather than 4..  We went to Madrona another year and then moved to this house.  Ellen started junior high (7th grade) and I went into 4th grade – 2 different schools and the age difference really seemed wide.

Ellen has always been a wonderful artist and I watched her do her homework for the Famous Artist Course.  It was a 3 year home study course, I admired her talent and ability.  She is an amazing artist and has been taking photos in Ocean Grove, New Jersey, for several years.  She has also done some paintings from those photos.

She was married and then I left for Australia to be married, so we didn’t see each other for a long time.  I would come and visit here, either by myself or with Eddie and she would come to see us.  It’s funny (peculiar) how the gap seems to widen between us until the last few years.  There is something about getting older that narrows the gap so I feel there isn’t such a gap.  All three sisters have had very different lives, but now my sisters seem so much closer even though we live far away from each other.

I did vist Ellen in Ocean Grove about 9 or 10 years ago – I went to visit my head office for my promotional marketing business and since they are in New Jersey, I just took the Garden State Parkway down to Ocean Grove to spend a few days with Ellen.  I’m so glad I did; I would like to do it again and also visit Candy in Nashville.

Happy Belated

Birthday Ellen!

Working Smarter

April 22, 2014

In February 2011, I had client ask for several quotes on short notice.  I worked my tail off for four days straight and finished before the deadline.  However, in the process I really wrecked up my right shoulder and was in such pain – I kept thinking it would soon relax and right itself, but it didn’t.  Not only was it the ice pick in the back of my shoulder, it was the stiff neck and very sore and inflamed shoulder joint.  To be honest, I was a mess.

That began the most intense three years of my life.  I started seeing Debye for massage for the shoulder pain and found it hard to do anything for quite a while.  I hurt so much and had trouble sleeping at night – not one of my of my better periods.   I started doing better after I began massages with Debye in May or June – way too long to get help – and then things began to really show up with Mom and dementia.   Around  July and August was the time when I couldn’t leave her by herself any more.  It was a very difficult time because I was recovering from the shoulder and it meant I couldn’t go out any more.  By December I was way past overwhelm and far into over my head.

I waited to long to find help – I kept thinking “It’s not that bad” but it was.  I was brought up with “Don’t ask for help, don’t bother or burden people”.  It finally hit me – I had been doing that all my life, especially with RA!  I remember talking to my sister Ellen on the phone around that time; I mentioned the Don’t ask for help thing and she had three words for me  – Ditch it, Girl!  She knew exactly what I was talking about, all three of us had been doing it for decades.  So I asked for help from the Alzheimer’s Association and finally had the help I needed.

February of 2012 I broke my hip tripping over my Mom – that sent me to the hospital and rehab for 8 weeks with another 4 in outpatient therapy.  By that time, my doctor, my family, my friends were really worried about me.  The therapists at rehab told me if I went back to what I was doing, I would be back in rehab permanently.   I realized I couldn’t keep taking care of mom without some major help.  I had arranged caregivers during the day so I could get out for a few hours a week for a break, but it was also time to think seriously of long-term decisions.

I went through paperwork to enroll Mom in the Providence Elderplace program – they would take care of all her needs and provide caregivers when she wasn’t at the Center.  It was good for her to go to the Center and be with other people – all the staff there is wonderful with all the people.    Also, her new doctor, PT, OT and anything else she needed was there.  They helped me find a really good adult family home for Mom because she was needing more and more care.  In October 2012 we moved her there and it was just the right time.  She was still able to socialize, any longer and it would have been harder.

More paperwork, then even more to apply for Medicaid – by that time I had gotten her checking account down to $2000 and sold everything to pay her monthly bill for Providence.  At the same time, we were applying for a loan and vast amounts of paperwork for that.  February 2013 Mom was approved for Medicaid but it wasn’t until the beginning of June when the mortgage went through.  Then 4 or 5 weeks of kitchen remodel for a wonderful kitchen.  So many other things still to do for the house.  I have been trying to sell the furniture so we can have our own things around us, but not much luck.  I don’t know if I just don’t know how to do it or if something is holding me back.    Plus, so much cleaning out!

February of this year I past the 2 year mark of breaking my hip.  My rheumatologist said 70% people who break a bone will break another one within 2 years.   I was determined to be in the 30% and I made it – no falls or broken bones since the hip. So here we are in 2014 and it feels like a brand new start.  I have decided to move our furniture upstairs and my parents down to the basement.  We need to paint the living room and I want Brad to create a new mantle with crown molding.  it has been raining so consistently I haven’t had enough clear days to move furniture and not get it wet.

So what does all of this have to do with working smarter?  I had a call from the client I worked with 3 years ago when I spent four days straight on her quotes.  I had a week to update them and this time, I paced myself over the week.  Yes, it meant I worked a lot on Easter but I wanted to be able to finish on Monday and feel human.  By George, I did it!  I took my time, took breaks, went out to do things and didn’t allow myself to get antsy in the that “Got to get it down” mindset.  She has a board meeting today where she will present i – no idea if the board will go for it this time or not.  They vetoed it three years ago.

So here I am, 3 years older and a whole lot smarter and wiser.   I have been doing a lot of quotes and very happy to report a lot of them have turned into orders.  I am surprised to look up and find my life has changed a lot from Feb 2014 – I’m not sure how it happened, I know I have changed a lot as well.  I am better at asking for help, knowing that when something comes up, I can handle it, especially knowing I have friends and colleagues I can turn to for help.  If it hadn’t been for Dave Gagley and all his help with Mom’s stuff, I would have been in a rubber room.  So many people are willing and happy to help, now I have ways to help other people when they are dealing with some of what I have been doing.

The hardest part is going to see Mom twice a week at the adult family home.  She can’t really carry on a conversation in worlds I understand, though it is in a very conversational tone – she understands it but the circuits between her brain and her mouth have too many shorts now.  I read to her, take my iPad to play music she likes and of course, she loves the chocolate and cookies I bring every time.  I don’t ever want her to think I have abandoned her, so I visit and enjoy what I can with her.  She is usually glad to see me, whether she recognizes me as her daughter or just a familiar presence.

Why Do I Have RA?

April 20, 2014

That’s a very good question, one I haven’t quite  understood after 43 years.  I talked to a medical intuitive a while back and she told me it was only my energy; I was hoping there was also someone else’s energy that could be cleared.  So it is all me – wonder what caused me to decide to experience it in this lifetime.

There is a quotation “Things are not done TO you, but FOR you”.  Well, that one takes some pondering – something I have spent a long time doing but not  really reaching any conclusions or answers.  Does that mean it is karma in some form, balancing out something from a past life?  I believe I have had past lives, though so far I haven’t remembered them myself.  Am I supposed to – is it necessary for this time on earth?  Sometime s I feel I have more questions than answers.

Is there something about my life that is overwhelming and I don’t know how to deal with it?Am I reluctant to take responsibility for things?  What things would that be?  Or is it for protection so I don’t have to deal with certain things “because I have RA”?  I realize I look at everything in terms of RA.  I see things I would like to do, but then see the physical obstacles that could prevent me because my joints aren’t always flexible.  I felt that way about riding the Duck, the steps were a little steep and somewhat difficult to navigate, but I went up and then back down.  Sometimes I am afraid to try – in case I fail and can’t actually do it.

Oh my, I can see I set myself up to fail by not giving something a try.  Part of it comes from feeling clumsy and awkward; I would rather not put myself in that position.  I also realize I am limiting myself – that I have put those limitations on myself.  I have felt clumsy and awkward most of my life, I was the overweight (not that much but enough) middle child between two slender sisters.  I don’t really know how it feels to be thinner.  I lost about 35 pounds when I was in junior college; now I realize I didn’t really believe it or feel it was really me.

Enough about that – it is the past and no longer something I want to focus my energy.  What just occurred to me is that RA may be possibly part of my Life Lesson and Life Purpose.  Maybe these are things I want to heal in this lifetime.  I was about to say “I think”  instead of stating it because I have always been like that.  One of my Life Lessons is standing up for myself, speaking my truth – at this point there isn’t an “I think” about it.  Another is taking back my power – what a wonderful discovery to realize I do have power when I always thought before that I didn’t have any.  What a concept!

I also realize I have had a very negative view of RA – it was done TO me.  I was an innocent victim sideswiped by RA – don’t think I can see it that way any more.  I have been writing about the gifts in RA, a much more positive view than in the beginning.  Anything to do with past lives, Spirit, etc. was not talked about because people who did were weird.  Heavy duty hocus pocus, woo woo and goofball stuff.  Yet that goofball stuff has really helped me, to understand a little better and also to take personal responsibility rather than continue seeing myself as a victim.

This seems a collection of random thoughts to me – I’m not sure it has logic or continuity to it.  As I write, thoughts come to me and I write them down.  It is one of those t imps where I am not sure where it is leading.  I admit to having to stop and wonder what to write next, then a thought comes and I start writing again.

I just thought of Louise Hay and what she wrote in her book “You Can Heal Your Life”.  She said that when you truly love yourself, things will sort themselves out – my words.  I have been focusing on two major things for quite a while – Loving Myself and Life Purpose.  So much of what goes on is a result of my thoughts and as she says “It’s just a thought and a thought can be changed”.   Also I have read and heard that what I am experiencing now is from thoughts not very long ago.  The problem I am having is recognizing what those thoughts are that continue RA and what the positives are to replace them.  I know a lot of those negative thoughts have been there for a very long time and it is hard to recognize them.

What surprises me is that my Mom’s dementia has brought some of the programs into the light so I can recognize them.  Then I realize how I have been operating with them all my life without knowing it.  I may not know yet the “Why” but I am learning ways to see what has been happening all my life; plus what and how I can change thoughts that once served me but are now invalid.  I am slowly creating new positive thoughts and patterns for this stage of my life.

Time For A Happy Dance!

April 3, 2014

myspace-cats-images-0004

We have been trying to get our taxes finished and filed since Barrie Lane – our tax accountant – died at the end of February.  I will say that his daughter Sarah has been swamped with work because she his doing taxes for her own clients and for Barrie’s clients.   She is doing a great job during a very difficult time.  I had my binder ready to go when we went to see Barrie, and it turns out he input things but they couldn’t find some of the back up material for some of them.  We had to scramble to replace those and By George, we did.

We usually go in around the 2nd or 3rd week of February because our business is due march 15th.  We had a tax extension that helped reduce the stress of coming up to a deadline and worried we wouldn’t make it.  We both have been pests and nag to find out when our taxes and my Mom’s returns would be finished – I wouldn’t be surprised to find other people were doing the same thing.  It was tough on the staff and they were friendly all through it.

We also had to del with 2012 issue once again.  Fro 2 moths we were employers for Kathy when she was taking care of Mom while I was in rehab.  When tax time came in February, Barrie created a W-2 for Kathy and we paid the taxes, etc. with our return.  Except the IRS came back a month later and said we didn’t pay enough.  Eddie paid it – under protest – because we don’t want to run afoul of the IRS.  Barrie sent them a letter telling them we paid it and sent the W-2 in to them.

Then February of this year we have a letter from Social Security saying the IRS shows twice as much as we submitted.  So I spent over an hour waiting at the Social Security office only to be told “This isn’t our department”.   Since their name was at the top of the letter, it seems logical to start with them – no, we had to deal with the IRS and send in the questionnaire.   I will say, Sarah and company took care of that and sent in the letter to the IRS as well as giving us a copy.  It is also possible the IRS will send another letter – no departments talk to each other.  We might even get our money back from the second payment, but I won’t hold my breath.  They are johnny-on-the-spot to collect but take their sweet time refunding money owed to us.

Finally, yesterday we were able to go down to Sarah’s office and pick up our returns.  I had the copies of the things they couldn’t find so they could scan  them into our account.  We signed the papers to have the returns e-filed and all we have left is the bill for the tax prep.  After all this time, it was hard to believe we had gotten to the end at last.

Definitely a Happy Dance afternoon.  I think we both slept well last night now that it is completed.

Visiting With Mom

March 9, 2014

I have been visiting Mom rather than visiting with her – I just noticed the difference this week.  I have had trouble dealing with not understanding what she says and curbing my urge to ask what she means or to repeat it.  My close friend Char told me recently she had visited her Mom and didn’t understand a word she said.  So she asked her Mom “Does that make sense to you?”  Her Mom’s answer was “No”.  I thought I would try it with Mom, though Mom’s answer was “Yes, it makes sense”.  Mom is operating under a different form.  What is interesting is that although the words are gibberish to me, Mom says it in a very conversational way – she knows what she is saying, I am the one who doesn’t understand.

GetAttachment.aspxMom with Candy at her book signing.  She is very proud of Candy.

Two things she definitely understands are chocolate and cookies.  I bring some with me every time I visit and she is delighted to have them.  I have learned not to ask her if she enjoyed the chocolate or cookies after she has eaten them because she doesn’t remember she ate them.  I have been nervous about what to say to Mom, but I am finding it a bit easier now because I realize I don’t have to know exactly what she is saying.

I have been reading Candy’s new book to Mom recently, first time I have read it as well.  I know Judy has told me Mom takes in things she hears and I am noticing that reading this book.  Friday she made several comments as I read and  at one point talked for a bit – not sure what she said,  just asked “Is that so?’ and Mom agreed.  So it wasn’t necessary to know what she said, just to acknowledge and validate it.  I can sometimes tell when she  thinks something isn’t a good thing, mostly my her tone and sometimes a “shouldn’t or no that’s not good” comes across.

Last Tuesday I took my iPad to play some of the songs she likes – except it once again gave me fits.  Some days it works well and other days it looks so different and I am not quite sure what to do.  I have begun to make a playlist for her so I will have the songs she likes, though I haven’t done too well with Bing Crosby so far.  What will play on my desktop isn’t always available on the iPad.  Now I have to figure out how to start the playlist.

It’s an interesting process and I think I am more comfortable now – there are times when I feel at a loss, but  I am doing my best.  I haven’t told her about Barrie dying, don’t think it will really register and there isn’t anything she can do about it.  I also haven’t said anything about our next door neighbor, he is having difficulty and two of the sons are there right now.  We had gone to bed Wednesday night and I heard this thrum and flash of lights – the fire truck was there and I saw a fireman in their kitchen.  Shortly after an ambulance came in, so I figured it was bad enough to take him to the hospital.  He was back home the next morning bit they may have to have someone there for a while.  I’m sure Mom would be worried if she knew.

I will admit I still have days when I don’t want to go visit Mom, so I make sure I have somewhere to go and do something entirely different after the visit.  Plus, I don’t want Mom to feel she has been abandoned.  When I come and she is very sleepy or having a nap because she had a bad night, I am almost glad we won’t have a visit.  I think she is more aware of things than I realize, but I couldn’t say in what way.  I think she still knows who I am at times, I am better at not taking it personally because it is part of dementia.  Some of what is happening has to do with getting older, some from dementia – I am so grateful to Judy for helping me understand what’s happening with the things I don’t quite understand.

It has been quite a learning experience for me and for Mom – I may never know how it is for her, but as a daughter and a woman, I have learned a lot over the past 2 or 3 years.   I have learned about myself, my Mom and dementia – strangely, there have been gifts in it I am still understanding.

I also wonder who will be there for me if I am in this position.

Unseen Journey

February 27, 2014

I keep wondering why Mom is still here when she wants to leave and go home – she misses my Dad and Josephine, her cat.  She seems more in another world than here in this life.  I have wondered what her purpose and contract is for this particular lifetime and I think I may now have a partial answer.  At least it makes sense to me, though it is her purpose and life rather than mine.   My sister Candy wrote this and it helps me see it from a different perspective.

I am so surprised that Mom has lived so long since Daddy’s passing, yet I have come to realize that she got to see so much of my own career changes, plus helping me through financially turbulent times, by staying. Now that I have business partners, it feels like I have finally landed in a safe place, and all the creative works that were in jeopardy in the financial crash have been rescued so that we can grow and prosper in this new publishing paradigm. Mom would have liked that; to know her faith in me was not misplaced. 
 
Of course, all Mom really wanted was for all of us to be happy, and even though we cannot guarantee that, we can choose to love each other the best we can, believe in each other and in ourselves, and also cherish our own private journeys, making choices that only God/Spirit/OverSoul will see. Perhaps Mom needed these years without Daddy to claim her own private soul journey. Who knows? It’s all part of the great Mystery, isn’t it? 
 
I do know one thing in my heart, though there is no “proof” that will convince any skeptic. That our souls keep growing and that this life is only one stage of a longer and larger journey. Even now, though Mom seems to be sinking into another world, this time is not “useless” but may be an incredibly important unseen work that will bear fruit only on the other side. 
 
I am more and more convinced that we must live our lives well and do the best we can, but then to let go of the results and to not judge. We don’t know what seemingly “unimportant” choice in our lives can have an effect that will reverberate in ways we cannot see. Who knows what is being accomplished in ways that cannot be seen on earth? We catch glimpses of our own stories, seen partially, as in a rear view mirror. How one choice affected our lives, even if we didn’t know at the time how important that choice would be. 
 
This stage of Mom’s journey is teaching me to let go and to allow her to have her own experience–something beyond her role as my mother and our adult friendship. I don’t know why she needs this particular form of leaving us. It has definitely taught me that there were many mercies in Daddy’s sudden passing. But then, there have been many mercies in this passing, in spite of the sadness and difficulties. 
 
Perhaps her process helps us in our process of saying goodbye. I’m sure that the feeling of Mom as all-powerful and all-knowing was just one stage of childhood, but I found I still carried that feeling with me into adulthood. And so if Mom didn’t understand what I wanted to do (move to Nashville and be a songwriter, among many things) part of me always wondered if she was right and I was wrong. Don’t get me wrong. She supported me. But there were some accomplishments and dreams she could share, and others that were outside of her interests and understanding. Now I am no longer reporting to Mom (other than in prayer and sending invisible love) and am taking responsibility for my life in a new way. And finding unexpected freedom to have my own experience, even if it is different from hers. 
 
I love reading D.E. Stevenson and other novelists we both loved. I share that with Mom in my heart. But I also love going to songwriter nights, and I know Mom might appreciate the fellowship of kindred spirits, but she wouldn’t have cared much for some of the forms that fellowship comes through in my life. There’s nothing disreputable about my songwriter friends (though they may sometimes be a bit raffish) but they just wouldn’t be her kind of people and she would not have appreciated most of them (or the reason to mess around with writing songs in the first place). But she would have appreciated the laughter and fun. 
 
Now Mom is showing me that it’s okay for us to have differing experiences, and sometimes the only thing we might have in common is the human journey. Since Mom’s journey is basically out of our hands (other than Lee and Eddie creating the safe set up so she could navigate this solo journey), there’s no use in feeling guilty that we can’t help her more–or that she can no longer participate in our journeys. I’m seeing that we are connected by Something so much larger than our limited human experience.
 
I also comfort myself knowing that we live life one minute at a time. And Mom does, too. I think that her world (at least on this side) is probably absorbed in the same kind of experiences we have when we are ill. Disoriented, feverish, and experiences based on bodily issues. At the same time, a dream world which is larger and stranger than earth reality. We already know she saw others during her train phase. I believe she is even more guarded in this portion of the journey by angels and ancestors. And, of course, our prayers. So I send love, believing that whatever she can’t use right now will be gathered up and taken with her when she begins that final journey and reaches her destination. I keep visualizing her on a brilliant but foggy shore, and Daddy and Josephine walking toward her through the mist, and following behind all the friends and family she knew. And she will know them there as she never knew them on earth; they will be seen so much more clearly in the bright sunlight of that other dimension where all the earthly realities become the dream, and we will live in the light of greater realities.
She wrote this in an email that really touched me and be more positive about Mom and her life path and purpose.  Thank you Candy for writing this post, I couldn’t have said it half as well as you have.  I realize I am too close to Mom and her journey, too close to see it objectively – I am grateful for my two sisters, they help me keep things in perspective.  Ellen said in an email:

I too am so grateful to Candy for her ability to express the seemingly inexpressible as we go through the process of feeling our way along with Mom and her changes.

I am seeing gifts in Mom’s dementia that I didn’t expect, so it isn’t all gloom, doom and depression. I need to pay more attention to see what she is teaching me with her journey with dementia.


Through The Eyes Of A Quilter

Musings by Ami Simms (As an Amazon Associate, I earn from qualifying purchases.)

Angelswhisper2011

Me and my Granny

TWO Spoiled Cats

Angel Sammy and Teddy Make TWO

Northwest Outdoors

This WordPress.com site is the cat’s pajamas

countingducks

reflections on a passing life

Universal Cosmic Consciousness

All experiences are the journey.

Tofino Photography

Professional Wildlife, Landscape and Seascape Photography

Rocking This Illness: My Story of Life with Behcet's Disease

Navigating Life with an Illness that Doesn't Define Me

I used to be indecisive...

...but now I'm not so sure

livelovebegreen

making my world greener, one day at a time

LEANNE COLE

Trying to live a creative life

Wiley's Wisdom

Joy: From the Ground Up

StickertyClick.com

" Creativity is a drug that i can't live without' - Cecil B. Demille StickertyClick, Destination for all of your edgy creative needs.

brent's iPhone & japan

what am i up to...

TwoCatsViews

Life as Seen by Hemingway and Steinbeck

Kalliope Amorphous

Art blog of Kalliope Amorphous

The Jiggly Bits

...because life is funny.

All Flared Up: An Arthritis Blog

Living Rather Than Wallowing