Posts Tagged ‘doctor’

A Mom Day

August 20, 2014

I would have written this yesterday afternoon but I was exhausted.  I had gone to visit Mom on Monday for a regular visit – she was rather sleepy and only ate the chocolate.  Elaine said she had made french toast for breakfast and I suspect that was shortly before I came.  I read and finished the book, putting her to sleep.  She was all that alert, so I didn’t stay long.  I left the cookies for an afternoon snack later.

Yesterday I had made an appointment for Mom to have her haircut at the Center.  I will admit I was not sure how much she would fight it.  I went to the Center and there was Mom, fast asleep in the wheelchair.  I took her down and she slept through it all.  Lisa cut her hair first, then shampooed it and blew it dry.  Lisa figured Mom would wake up once she started shampooing, but she didn’t.  I held Mom’s head up a bit to make sure the water wouldn’t run down her face.  Her hair looked so much better when Lisa was done, it had gotten so long.  She is now on a 6 week rotation to have her hair cut, I want to make sure it is done on a regular schedule.

By the time she was finished, it was noon and time for lunch.  It also turned out she had a check up with the doctor that day as well – how do I manage schedule a haircut the day she is to see the doc?  Anyway, I had some time on my own until the doctor.  So I went down to the small gift shop to wander around, then went to the car for my book.  There is a small cafe just down the hall, I had half a sandwich and a bottle of lemonade – boy, was I thirsty!  I read and while I had lunch and was able to regroup for the doctor’s visit.

I went up about 1:15, Mom had woken up and was awake long enough to eat a good lunch.  Then she was back asleep in the examine chair.  They also noticed she tends to list to the left, something they really hadn’t seen before – she does that in the chair when I go to see her.  She got very feisty with them when the doc and the nurse were examine her.  She was mostly asleep, but fought with them when they were checking to be sure her skin is in good condition, all around her abdomen, checked the lump, didn’t do too well looking in her eyes.  There was one point when she fought and said “Stop it, God Damn it!.  Not what one expects Mom to say.  Definitely the dementia doing its thing.

It was so hard to see her in that situation and how strong she still is – the doc and nurse were being as gentle as they could but it looked worse than it was.  It was upsetting and at times as I was answering questions, I found myself getting weepy as I told them what they wanted to know.  I said I notice now she mumbles more, not distinct words that rhyme that she repeats.  The lump has not become any smaller, nor will it; so she said they want to just keep an eye on it so it doesn’t get any bigger.  On the whole, they are pleased she is doing as well as she is.

When I had first come in, I saw Denise, the social worker who helped me so much.  A few months ago she asked if it would be all right to have a woman who used to work Traveler’s Aid come visit Mom.  I said “Of course!”.  Last week Jane came by to visit Mom and she talked to Mom about the orphan meets and Mom lighted up and actually spoke the words Airport, Babies and happy.  She smiled and was holding a stuffed animal, so was Jane – they showed each other their baby.  It was a small slice of a happy time.  I am  pleased it worked out so well.

The past three days have been  a lot of ups and downs, the downs have been mostly with Mom and I found myself out of sorts and cranky when I woke up this morning. Part of it was from a dream about Eddie, he had moved everything around in the kitchen, we had guests and I had no idea what house we were in or where anything was.  I couldn’t fix anything to eat for people, had no idea who they were and sometimes I think I had very few clothes on.  So it has been a weird day.

We have a new tax  man and we have seen him every Wednesday for the past 3 weeks.  We went in to meet him and the following week brought all our tax stuff for the past 3 years.  We figured the next time would be when we came to do the taxes – no such luck.  The IRS and Social Security sent us another letter about the 2 months when we hired Kathy while I was in rehab.  We have paid the money but somewhere it hasn’t come together, but he found the problem and had it put together in half an hour – ready to send off.  let’s hope it is the end of it.

this whole Mom situation has been a really education and learning experience – I wonder if I am expecting myself to do it perfectly.  The doc thinks I am doing a really good job, the caregivers think so – I have gotten a lot of positive comments.  I’m doing the best I can and that is as perfect as it will ever be.

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A Short Reunion

June 24, 2014

As a result of my slide, I have become reacquainted with my cane.  It took a little practice, but I’m doing pretty well, not tripping over it so much.  It has been hard to walk since Friday afternoon and the cane has helped.  It was not my fondest wish to have this reunion, on the other hand, I am glad the cane is there.  I have had it in my car trunk for the past two years, occasionally I use it if I am not sure of the  of the terrain or if there will be a lot of people.

Black_Cane_T_HandleIt’s not a fancy cane, I bought it at Rite Aid for not too much.  I made sure it was adjustable and during out-patient rehab I asked the therapist how to measure to make sure it is the right height.

I haven’t done a lot of exercising, though Saturday I  went in a couple of places.  I was tired when we came home, so I had a lie down.  Eddie wanted to walk by the river in Renton so he could check out the flight line for the 737’s – I was quite happy sitting in the car reading.  Then we went to Panera for coffee, about the extent of walking.  Yesterday I went to see Cheryl, my chiropractor.  I explained what happened and how it had been feeling, so she worked on different places that connect with the knees.   I had an Apple One To One at 11 to work on my book.  I seem to have found something that seems to stump them a bit.  Both Larry and I learned a lot about iBooks Author – says he likes a challenge.  I told him I was ready to forget the whole thing because it has driven me crazy – but I am not about to let technology win.  I decided to go home, have something to eat and have a lie down – sometimes it is smart to do that after an adjustment.  I am glad I did because I was a bit more tired than I realized.

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One of the aspects of  RA and pain is how varied it is – with this situation at the moment, the pain has been different every day.  Friday it was sharp pain in the outside of my knee, yet Saturday it felt as if I had a tight clamp below my knee.  Sunday the clamp was in the middle of the knee and at times there was a sharper pain in the middle of the knee.  Yesterday the clamp was around the knee and today the clamp is mostly gone but the outside of the knee feels as if someone is hitting my knee each time I bend it.  That is one thing that really baffles me about RA – it is never the same from one day to the next.

Today is doctor morning, I am going to see my primary doc for a check up – he has been pleased with my progress, but not sure what he will say about this latest incident.  I don’t plan to do any “running around”, just buy some cookies for Mom for tomorrow.  She was alert and doing well last Friday, though I noticed she was in the wheel chair.  Apparently her knee was bothering her, so they use the chair.  Otherwise they make sure she uses the walker so she won’t forget how to walk.

LATER

I saw the doc and he was pleased with me – not necessarily the slide but my blood work, blood pressure, etc.  Unfortunately he weighed me and I am 15 pounds heavier – Ye God’s and Little Fishes!!!!  I suddenly realized the weight gain a week or two ago – I can’t believe I let it happen so easily.  I have spent a lot of the last few months  working a lot at the computer and not getting very much exercise; now the knee as well.  Yet I have noticed I don’t eat as much because I get full much faster and I opt for fruit for dessert at night.

I went to the store for Mom’s double stuffed Oreos and came home – I am noticing my knee is now on the side, a little below the joint and it feels like badly bruised bones.  Cheryl always says it takes some time for the body to integrate whatever happens and the next day may be uncomfortable.  I have an open house at Breakfast Club – I am hoping things will be more comfortable in the morning.  Afterward I will go see Mom.  This is not the time to put up a facade of “I’m doing fine” because I’m not.  It has worn me out and I am dragged out tired and not always sleeping well; I have trouble finding a comfortable position at night and walking is not particularly comfortable either.

I know I will come through this eventually and be more comfortable – it gets old very quickly to be hampered like this.  I have a quiet week and don’t have much on the calendar because I know rest is important.  I dealt with many other times like this one, though it doesn’t get easier and I haven’t “gotten used to it” either.   However, it doesn’t last forever, just often feels as if it does.

THIS TOO WILL PASS.


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