Archive for the ‘Musings’ Category

Clearing The Garden

July 1, 2012

This has been quite an interesting week.  Last Friday John Van Zanten  of Van Zanten Landscapes came by with his crew and spent from 7 a.m. to almost 4 p.m.  chopping down the jungle.  Unfortunately the yard had become so overgrown that the blueberries were being squeezed unmercifully by blackberry vines, holly and the wisteria.  Meanwhile, the raspberries were lost in the tall grass.   When they emerged into the daylight, they were small and rather sparse but with berries on their branches waiting to ripen.  The pink dogwood was buried in tall grass with a small alder tree growing right next to it – that bed is clear and the Fontinia stump has some sprouts coming out of the top.  We have a big stickery bush on the corner of the front window that grows so tall it blocks the view – so does the forsythia at the other end.  For the moment it is trimmed way back but will be growing again with more energy.  It is  quite a difference now – they even unearthed the McIntosh apple tree by the hedge – poor thing was so overwhelmed it kept sending branches farther out into the yard for sun.  Now it has sun but the back part is all bare.

John and his crew came back on Monday to do some more clearing – there is still a third in the back by the street that needs clearing out as well.  I asked Nancy of Artistic Garden Concepts to come by and give me some ideas about plants for the bare beds.  I want good looking plants that are very low maintenance and she had some great ideas.  So we will work on a 2 stage plan – otherwise it is  a lot in one go.  So I will check with John to see how soon we can replant with low vibernum and a couple of other lower growing ground covers.

While they were out clearing the undergrowth, I was in the process of clearing out and organizing the office.  I accomplished a lot in those two days, though it didn’t really show on the surface.  Then I had my haircut much shorter than usual – I like not having to fuss with hair dryer, styling and hairspray.  It may not be as short as Judi Dench or Jamie Lee Curtis, but not a whole lot longer.  I have spent the last year or so clearing out old stuff inside me with my deep tissue massage – would one say it is a good spring cleaning all around?

We are in the process of finding a place for my Mom to live, she is at the point where she is very, very confused and really needs more care.  She is getting close to the late stages of dementia and we want to do the best for her and for us.  We found a place in West Seattle that has Adult Family Homes and Assisted Living.  I am not sure which will work for Mom.  There is also a Day Center for them to go during the day, plus she will have a doctor, OT, PT, Social Worker, dentist, etc. to make sure she is well  and is at  her best.  Once I get the paperwork in – the young woman was on holiday last week so I have to give it to her on Monday.  There will be a case worker to assess what suits Mom, then they will recommend places for us to see.  We will probably choose two and show those to Mom to see which she likes.  Kathy has been laying the groundwork and has been an enormous help and has also become a really good friend.

I will admit to being close to the end of my rope, even with caregivers every day.  If she is up for breakfast with me, we go through 50 questions and after the 8th time she has asked a question, I am ready to tear my hair.  She can be stubborn, ornery and contrary at times, other times she is quite cooperative.   She wants to leave this life so much, but she is scared and confused – she is scared there won’t be anything after she is gone.  She so wants to believe that Dad and Josephine the cat will be there to greet her, but isn’t ready to let go of this life she doesn’t want to live any more.  It upsets and hurts me to see her like that, I want to fix it and make it all better – but I know I can’t.  I reassure her they are waiting for her – I asked Monty on Friday if he could see anything for Mom and he said they are preparing a place for her with guides to help her through the transition.  I believe it but even when I tell Mom that, she doesn’t believe it.  Is it too good to be true for her, therefore it must not be true?  Maybe deep down she doesn’t feel worthy.

Someone told me awhile back that this is the hardest part – no kidding!  I have been going to caregiver’s support groups and I realize I am quite fortunate that Mom is not violent, doesn’t wander off, isn’t incontinent or swears at everyone.  She sleeps a lot and that also helps too.  But it is difficult to see the woman who has been such a big part of my life not recognize me except occasionally and is as confused and unsure as a 3 or 4 year old.  When she is finally able to truly let go and join my Dad, it will be upsetting for me.  I also will know she is no longer confused and scared, instead she will be free, light and filled with joy.

I have been feeling that all this clearing out is also in preparation of all of us going into a new life.  Hanging on to the past and all the “stuff” from it  means there is no space for new things to come in – I am working on that just in my own life as well.

There’s Something About Bunny

June 24, 2012

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Two days after I went to rehab, a close friend, Chloe Ann, came to visit and brought a soft, cuddly, stuffed bunny.  It was a light brown with slightly curly fur and  long ears that were velvety inside.  I was so pleased with that bunny, just what I needed at that moment.  She thought I would have plenty of flowers and things and when she saw the bunny, she knew it was just the right thing.  I slept with the bunny every night and any time I had a nap in the afternoon.  I asked the bunny if it would tell me if it was a boy or a girl.  She let me know she was a girl. I asked her if she would tell me her name, so far she hasn’t, so I call her Bunny.  One of the nurse’s aid, Eleanor, decided her name was Cozy because we looked all cosy together in bed.  When she made my bed, she would sit Bunny up again the pillows and spread her ears across the pillow.  One day I said to Eleanor – “You haven’t finished making the bed”.  She came over and looked, studied the bed for a bit to figure it out.  Finally she realized Bunny was on the chair across from the bed.  She laughed and put Bunny in her usual place by the pillows.

I had many people compliment me on my Bunny, they thought she was so cute and adorable.  When they woke me up at night for blood pressure and who knows what else, they were often surprised to see me with Bunny, but also raved about her as well.  When I was moved upstairs to another room because I didn’t need nursing care, just therapy, I was in my wheelchair with Bunny.  As I went down the hall I heard people laughing and enjoying the picture we made – I had buttoned Bunny into the front of my sweater so she wouldn’t fall.  She was facing out so she saw where we were going.

Bunny has been in our room since – I just realized I hadn’t taken her with me to the hotel.  She would have been company since I spent most of the nights by myself because it was extra traveling for Eddie.  Oh well, she was waiting for me when I came home.  When Eddie makes the bed, he puts Bunny in the middle between the pillows.

I have had trouble sleeping comfortably with the hips and legs, I do a lot of tossing and turning, which keeps Eddie awake a lot.  I either sleep on my side or on my back propped up with some pillows, sometimes it works and sometimes it doesn’t.  I don’t sleep enough to really feel rested, I am hoping one of these days it will all settle down.

I will come clean, for the past three weeks I have been sleeping with Bunny again.  What I find interesting is that I am sleeping better with her in my arms.  I don’t know if it is psychological or that Bunny has a special vibe for me.  I just know I have slept better in the last three weeks.  Now I have had some nights that have not been so swift even with Bunny, but on the whole it is better than without her.  I realize to some it is ridiculous for a 65 year old woman to sleep with a stuffed animal; however, I am not interested in other opinions.  It is working for me and that is all that matters.  Of course, after this post is published, the whole world will know instead of just me and Bunny.  My guess is that I am not the only one who sleeps with a plush animal.  Here’s to all of you!

I am going to publish this right now and may have more to add later.

Some Clues To What’s Happening To Me

June 17, 2012

I came across an article called 51 Symptoms of Spiritual Awakening – it really explained a lot about what has been happening lately.   It comes from a link on one of Misa Hopkins messages called “Not All Symptoms Mean Something is Wrong”.  This is the link to the 51 Symptoms by Annarita.

Because of my recent broken hip, I was surprised to find it on the list – #41 Falling, Accidents and Breaking Bones.  Her take on it is:  Your body is not grounded or perhaps your life is out of balance. Or your body may be telling you to slow down, examine certain aspects of your life, or heal certain issues. There is always a message.   She also adds some advice to help understand and cope with it –  Advice: Stay grounded by taking your shoes off and putting your feet in the grass; even better, lie down on the grass without a blanket under you. Feel the earth beneath you. Get out in nature. Slow down and pay attention. Be mindful about what you are doing. Feel your feelings when they come up. Stay in the present. Surround yourself with blue light when you are feeling shaky.

#16 is also very similar –                                                                                                                                                                                    Events that completely alter your life: death, divorce, change in job status, loss of home, illness, and/or other catastrophes — sometimes several at once! Forces that cause you to slow down, simplify, change, re-examine who you are and what your life means to you. Forces that you cannot ignore. Forces that cause you release your attachments. Forces that awaken your sense of love and compassion for all.

This has a lot of meaning for me because I have been thinking these past few months since my life narrowed so much with Mom needs that it is time to step away from my business and my life and rethink what I truly want to do for the rest of my life.  I know I want to know my purpose and life’s work doing something I love and feels so right.  I have some ideas about things I want to do – I thought I would have time last fall and then in rehab to write out what my thoughts are and just let it flow out of me.  Unfortunately I have been so bone weary and emotionally and mentally exhausted that I have had no energy to do any of it.  There may also be a part of me that is a little afraid to see where it takes me, for so long my first response to things has been “No”.  But I am choosing “Yes” more often and seeing where it takes me.

#1 is changing sleep patterns.  Man, is that ever true!  I am ready to go to sleep when we turn out the light, then I am wide awake for 3 hours or more with my mind racing.  Sometimes it feels like a squirrel cage, other times I come up with great ideas – that I promptly forget when I finally go to sleep.

#2 is activity at the crown of the head.  Wow, is that cool to know and feel my God Force Energy coming down from Source and going through my crown chakra.  I would love to feel it going all the way through my body and out through the bottom of my feet into Mother Earth.  Hasn’t happened yet but I’ll bet with practice it will.                                                               Advice: This is nothing to be alarmed about. What you are experiencing is an opening of the crown chakra. The sensations mean that you are opening up to receive divine energy.

#9 is skin eruptions – back to being a teenager again. Advice: You may be sloughing off toxins and bringing emotions to the surface. When there is an issue to be released and you are trying to repress it, your skin will express the issue for you until you process the emotions. Work through your “stuff”.  Boy, do I still have stuff to work through!

#12 is power surges – otherwise known as hot flashes.  I thought I was finally finished with all of that, but looks like this is a new chapter –  like most of the symptoms, it is best to let it happen and realize it is only temporary.

#18 is Emotional and mental confusion:
A feeling that you need to get your life straightened out–it feels like a mess. But at the same time you feel chaotic and unable to focus. See #45.

Advice: Put your ear to your heart and your own discernment will follow.

There are a whole lot more that apply to me, but this gives you an idea of what it is about.  I have this feeling there is something coming, something really cool but have no idea what it is.  Mostly it feels as if I have to complete my hip healing and also to settle Mom into a place where she is cared for and has activities and people all around her.  She has been sleeping a lot of the time, not sure if it is just getting used to a new med or a way of escaping from a situation she doesn’t want to be in any more.  She is so ready and anxious to go be with Dad and Josephine the cat – yet she has no idea why she is still here.  It is hard to see her this way, often confused about where she is and who people are.  While I was in rehab, she forgot I lived here and has mostly forgotten who I am.  Once in awhile she knows – I think I have taken a lot of the emotion out of it, but I suspect it can hit me in the face when I least expect it.

Once I have done the best I can for all of us, I need some time to rest and regroup.  Then I can think about me and what is in store for me.

The Greatest Sin

June 10, 2012

Friday was my last day at outpatient physical therapy – they said I had graduated after four weeks of 3 days a week.  I was surprised when Michael told me I had worked my ass off during therapy and didn’t refuse do things because it hurt.  That felt really good to hear, it has been over 3 months since I broke my hip and I am so grateful to be walking again.  The surgeon says it will take a good 8 months to heal, so I am  watching how I progress each day.  I will admit it has not been easy, especially in the beginning right after surgery and when I had a bad flare up because I wasn’t able to take Methotrexate for 3 weeks.  Yes, I did the work and I am proud of myself; the therapists were great helping me through each stage and showing me what I needed to do to recover.  It was a great joint effort and I am very grateful and appreciative of all the OT and PT therapists.  I won’t miss the work very much but I will miss my friends.  By the way, I went up to 10 resistance on the cross trainer last week – another personal goal met!  I am also so very glad to be mobile and independent again, I am free to go where and when I please instead of depending on others to give me a ride.  I am also very grateful and appreciative of everyone who gave me rides and really supported me all through this time.

I also went for my first deep tissue massage in 3 months – oh, did that feel good!  I have missed it, plus I missed Debye and Monty for their love and support and all that I learn from them.  I was really looking forward to my massage, not only for how good it feels but also whatever messages come from the Universe.  The message came right in the beginning – What is the greatest sin?  I was surprised to hear myself say “Not loving myself and beating myself up”.  Lord, I have spent my life doing both.  I haven’t loved myself because the perception of early negative messages, then the continuing negative messages from all sides.  As I lay on the table, I realized I believed those messages of not good enough, not acceptable, not pretty – you name it – because it came from people I thought of as being smarter, more talented, more successful, more whatever than I was.  Well, who made them the oracles in my eyes?  Why did I think I and my opinion was of lesser value than someone else’s?    I spent so much of my life beating myself up because I didn’t think I was good at anything.  The idea of thinking well of myself came  up against the old training of thinking well of myself means I am boasting, bragging and arrogant.  As I wrote that beginning paragraph about being proud of myself, I could feel that old program come up.  Earlier in the morning it came up when I looked in the mirror after I got out of the shower and looked myself straight in the eye and said “I love you”.  I just told ego “Thank You for sharing, I choose something different and positive.  It wasn’t as strong for the blog as it was for the mirror and now I find myself  saying quietly to myself – “You aren’t boasting or bragging, this is a statement of fact.”  It is important for me to learn to pat myself on the back for things, even when it feels as if it is no big deal.  I am learning to acknowledge my accomplishments, my abilities and my intuition much more often and  no longer letting ego run the show.

What amazes me is that since I fell and broke my hip, I have not run the scene over and over in my mind, looking at what I “should” have done, things I wish I would have done or blaming myself or anyone else for it.  That so amazes me because that is the typical way I have always done it in the past – kicking myself for not having done such and such.  It doesn’t feel as if it was a conscious effort not to do it, maybe I was too busy dealing with the consequences to think about it.  Whatever the reason, it is a lovely change in thinking and I set an intention of continuing to operate that way.  I know I have said I needed a break from care giving Mom, I was thinking of 2 weeks in a spa rather than a broken bone and 8 weeks in rehab.  Something Debye said has me thinking and wanting to know more – I broke the right hip, that is my masculine side and that it has broken some ties of dominance in my life.  I need her to tell me more so it makes sense to me – that I know that I know.  I think it is all part of knowing that one’s life is progressing or happening the way it needs to, that there are no accidents.  I have a lot more studying of this before I feel  able to write about it.

What I do know is that loving myself – every part of me – deeply, completely and without judgement is the most important way to healing.

An Enforced Sabbatical

June 3, 2012

Most people who take a sabbatical have a plan and focus as well as a goal for the time they take away from their business or career.  The past year or so, I feel as though I have had an involuntary sabbatical and there has been no plan or goal – I didn’t realize it was happening until it was several months into it.  Last year I spent a lot of the first half dealing with a terrible sore neck and shoulder – difficult to do much in the way of work on the computer and not too swift in everyday tasks.  I did begin deep tissue massage which has helped me so much in mind, body and spirit.

As I was having a lot more relief from the pain, my Mom was getting more and more dependent until I couldn’t really leave her on her own.  I found my world narrowing so much that my business really suffered until there wasn’t a whole lot left.  By October I was overwhelmed but didn’t realize it until I went past it into in over my head.  I had thought it was time to regroup, refocus and decide where I want my business to go.  It seemed a good opportunity to think and meditate on what exactly I really want.  A great idea but I didn’t have time or energy to really sit down alone in a quiet place and listen.  I had to find caregivers for Mom and even 4 hours to myself wasn’t very much to accomplish the things I needed to do, much less contemplation about my future.  As I established some care givers – Bam, there I was on the hall floor with a broken hip.  I spent 4 or 5 days in the hospital after surgery, then 8 weeks of rehab.  Wow I thought, time alone to read, write meditate and ground myself.  I was so tired and depressed I had no interest in reading, much less writing.  That was frustrating because reading is one of my greatest pleasures.  Oddly enough, I had 2 orders for my promotional marketing business while in rehab – boy, was that unexpected!

To be honest, I still haven’t processed a lot of what has happened, especially from my hip.  I know I can no longer do all the things for my Mom that I did, so many people telling me I will end up back in rehab permanently if I do.  It has been hard to  not do things, though when I tell my Mom I can’t do something because I broke my hip, it seems to register with her.  I feel as if I am shirking responsibility but since my husband, my doctor and my therapists are all worried about me, I am getting better at being at peace with it.

Now that I am finally mobile again and can go places myself, I thought I would have time to find a quiet place by the water to write and just go within.  Now it seems there are so many things I need to do I couldn’t before but I keep running out of energy a lot sooner than I want.  As I write this, I am wondering if these are all just excuses because I am reluctant to actually sit down and just write whatever is ready to come out on paper.  I wonder if I would feel more ready of there was a step by step plan to follow, but then change it any way I want.  When it comes to writing, the hardest part is putting tush in chair – the rest happens even it is stupid, lousy or brilliant.  It is as if I am afraid to truly go within because I am worried there won’t be anything there.  Maybe I just prefer have the answers spelled out for me so I don’t have to do the work.

One thing I know, this is not the time to make any major decisions because I am bone weary physically and drag my ass tired emotionally, mentally and spiritually.  Plus I am in the middle of dealing with Mom and the next project is to find a place for her to live where she is well taken care of and safe.  I have started by talking to a good friend who has done this for years, so I don’t feel I have to navigate through all of it by myself.  She has a possible place for Mom that sounds really good because she would have her medical care covered as well as a doctor, dentist, social worker, OT, PT, etc.  Plus, when she is not able to take care of herself  they would move her to a more nursing type place.  She is checking on it to see what it takes to qualify and I need to speak with my elder law attorney about some other things.  At least I have put things in motion, but it will take a while.  We need to have her on a waiting list now rather than wait until it is a crisis – it felt like a crisis back in November when I called the Alzheimer’s Association and I don’t want to do that again.

I keep wondering if this is my job, task or business for the moment, that once I take care of Mom I can start to concentrate on me and what I really want to do.  It feels as though I have been in transition the past few months – almost as if I am at a crossroads in my life.  I feel as though any time I wonder about what I want to do, what my purpose in life is or any other type question – there is a big fat question mark and all I hear myself say is “I don’t know”.  I have been so drag my ass tired for so long, I have forgotten how having energy feels.  Thank goodness I am not alone working on this and I am so looking forward to my deep tissue massage on Thursday – it has been 3 months since the last and I have missed it tremendously.

Writing A Blog

May 27, 2012

The cool part of writing a blog is the freedom to write about what I want, how I feel, how I see things, etc. without having to fit any mold.  This is all about me, my life and what I am learning – a way to help others and for me to learn from them as well.  It isn’t like school or business where it has to be a certain way, meet any particular standard or fit any mold – I thoroughly enjoy the freedom from all those restrictions.  I can write about RA and my experience with it, what I have learned, what I still have to learn, all with the hope it will help me clarify things for myself and help others along the way.   After a recent post, I suddenly began to doubt myself, wondering if it was something anyone wanted to read.  I wondered if what I was writing was “right or good enough”, would it turn away the people who have been reading my posts.   I had to stop and catch myself and realize those doubts came from ego.  Then I told ego “Thanks for your concern and wanting to protect me, I choose something different”.  If I sit and scrutinize everything I write,  worrying what people might think about it, I might as well pack it in and be done with it.  I finally understand I am speaking my truth at last.

Most blog entries have a specific subject and I start in and it writes itself to the end.  Other time it is like this one, I get an idea and write a paragraph or two and then wonder where does it goes, what do I write about now.  Some things I write about may seem rather airy fairy, touchy feely, woo woo, goofball stuff – everyone is entitled to their own opinion. I find it helps make sense of what I am feeling, thinking and experiencing.  I have never really felt I fit in the regular world, not sure where I fit in, if I did.  With the personal development I have been doing, networking for business with people in alternative medicine and finding myself much more open and non-judgmental, I have found a place where I am comfortable, where I belong.  I may not know specifically what I want to do or how my life will look, but I know how I want it to feel.

I look at my life now and how it was a year ago – such  vast difference!  At this point, the focus is on my Mom and doing what’s best for her, there isn’t a whole lot of “Me time”.  Here and there I have been able to do things for me, the deep tissue massage has truly been a revelation to me.  I have always wondered about past lives and if it was true, plus what were mine like.  Several times in massage Debye has had glimpses of me as a Roman warrior.  That I was strong, powerful, confident and also imposed my will on others.  This lifetime (maybe several others) is the time to balance that karmic energy and experience.  It is not good or bad, simply an experience I chose.  I see my life this time and it seems I have had people impose their will on me; wonder how it felt to be that strong confident that Roman Warrior.  It is such a new concept for me, I am just sitting with it and letting it simmer on the back burner.

I have been putting tags on my posts – I just learned how to do it.  As I read over them, I am amazed I wrote them – I have been writing down what is happening in my life and how I have been thinking about things.  It makes me feel good to know I  am writing so well (sorry ego, I have confidence in myself rather than thinking it is bragging or boasting).   I have learned from writing down what’s happening, I hope in some way it can help others.

Truly Back Home Now!!!

May 27, 2012

All three of us came back to the house last Saturday because the bathroom was mostly finished.  The shower doors weren’t due to be installed until Monday, so it was a spit bath or nothing.  The whole bathroom looks amazing – when I asked Brad the contractor how he felt about it, I expected him to be pleased.  What a surprise when he said he was thrilled with the way it  looked.  Now that was unexpected and gratifying.  Now that the doors are on the grab bar inside the shower has been installed, what a pleasure to have a shower without climbing over the tub.  It was well worth the three weeks it took to transform it.  The stall is only about 4″ to step over, I was preparing for 5″ with my OT in rehab.

I will say it has been an adjustment to be back here, sometimes it didn’t feel real in the beginning, but I am doing a lot better now. I think it has been the hardest on Mom, she is still adjusting to it and believing it is real She is getting more and more confused and no doubt those three weeks in the adult family home really confused her.  So we are taking it slowly for her, not doing any other changes like new towels, etc. until she has adjusted.  It has made us realize it is time to find a care facility for her – what kind I have no idea.  I suspect this is going to be quite a learning experience for me, thank goodness I have some people to help me.  What an eye opener to see what happens when one doesn’t have long term care insurance – now I really understand why it is os important.  Eddie just qualified for it and also got a discount, so I know he is taken care of in case he needs some help.  I don’t qualify because of RA, so I need to figure something else for me – possibly a money market and laddering CDs.  Right now I need to focus on Mom.

I have been doing out patient therapy for 3 weeks – the first two weeks I was still at the hotel, last week I was here and my friends really came through for me by giving me rides there.  I chose to go back to Stafford health Care because I know the therapists and they know me – I didn’t want to break in a new set by going somewhere else.  They weren’t kidding when they said out patient therapy was more aggressive and there will be pain – what an understatement!  But I know I need it because the right leg muscles are weaker and I need to strengthen them so I can stop walking like Walter Brennan.  I have had mostly thigh and groin pain, though the hip has had its share of discomfort.  This week has been more uncomfortable sleeping, I can turn on my side and sleep on the healed hip.

Thursday was a red letter day because I saw my surgeon.  I wanted to drive again and was hoping he would give me the okay.  Eddie came with me because he wanted to talk to the doc because he is also an Armenian.  The doc took an x-ray and told me he is very pleased – the hip has healed perfectly and the plate and screw has stayed exactly in place.  Couldn’t think of better news unless it was when said I could drive when I felt able.  Whoopee!  I was anxious to try but also a bit apprehensive to experiment – finally I tried on Friday around the neighborhood and it felt fine – almost as if I had just driven the day before.  So I am now on four heels again, but not the wheely walker!  I am using a cane and the doc was happy about that.  He told me not to be in a hurry to  stop using the cane and I agree – it let’s people know not to bump into me.

A low point for me was on Wednesday – we went to Barnes & Noble for coffee before going to the doc.  I went to use the restroom but the handicap stall was being used. I was concerned about one of the regular stalls but went ahead and used one.  Well, I couldn’t get up!  I tried whatever I could but it didn’t work.  Finally the woman using the handicap stall was on her way out and I asked if she would help me.  She was so sweet, she pulled me back onto my feet and I thanked her profusely.  I told her how much I appreciated her help and she said we all need help at one time or another.  She had twin girls who didn’t look more than a few months old, so I suspect she has had a lot of experience with help.  Looks like I am changing my old childhood programming slowly but surely.

It has been an interesting week – this coming week will be my first mobile week in 3 months.  I am going to finally have a haircut – I know Michelle with be horrified at the hacking I have doe to it, but needs must.  I am also going to have a massage again, boy have I missed those.  I have three days of outpatient therapy as well – pretty well fills up my dance card for the week.  I think my ambitions out strip my energy – I will have to work up my stamina.  It feels so good to be mobile again, it is hard being dependent on others for rides.  I have also found through this journey what good friends I have in my Breakfast Club and other friends.

Finally Home Again

May 20, 2012

Yesterday morning all three of us came home for good – the bathroom is almost done, the shower doors will be installed on Monday and the last few details finished.  So it is spit baths for a couple of days and then it will be a fully functional bathroom.  In some ways for me, I don’t feel I have been home at all – yes there were those 3 or 4 days between leaving rehab and living in a hotel.  I have felt temporary for the last 3 months or more since I was taken out feet first to the hospital on February 24th.  It has been an interesting journey and experience – still going on too.  I am curious to see what changes have happened inside me, right now I think it is too early to tell.  Maybe others can see changes from the outside, I am not sure.  Right now it is another adjustment coming home for good at last.

Everything is the same, yet different.  First off, there isn’t the room in the sink cabinet that we had before and there isn’t a shelf unit above the toilet any more.  That means figuring out where everything goes and what can be thrown out or given to St. Vincent so someone else can use it.  I also realize how crowded with stuff the office and our bedroom are – I know I am a pack rat and this has certainly brought it home to me.  There is the thought in the back of my mind, “What if I need it later?”.  It is that “just in case” mindset even if it turns out I never need it again.  Maybe it is simply that the rooms seem smaller than they were before and  I know that in order for new things to come in, I have to clear space for them by clearing out the old.  I realize a lot of things are from another life, a person I am no longer in this moment.  I will admit to feeling confused and unsure about who I am and where I want to go – it is as if I have been disconnected from everything I know for a long time.  Now that I am home I can reconnect – but now only with that which is truly me and what I want.

I also feel as if I am in transition with my business, I don’t quite know what direction I want to take it.  Over the past few months with my life narrowing so much as Mom was not able to be left alone, then breaking my hip, my business is almost at a standstill.  I have been thinking since last fall, it’s a good time to rest, regroup and redefine what I want to do.  The only problem seemed to be with me, I was so bone weary and mentally and emotionally exhausted that I haven’t been able to think straight.  I haven’t had the energy or interest to do anything about it.  When I went to rehab, I thought I would have time to read and write to help me see where things were and where I was heading.  Unfortunately I was so tired I had no interest in any of it,  so tired and dragged out – what I call “drag my ass tired” – I couldn’t even think about it.

Physically I am doing a lot better, I am walking with the cane around the house and for short distances outside.  I feel more independent with the cane, plus not so much hardware to put in the trunk .  But I still need to use the wheely walker if I am going to the store or longer distances – the therapists think I can be back walking without anything as I did before I broke the hip.  The one thing that is most frustrating is not being able to drive, to go and do whenever I want.  I am dependent on rides to therapy and I will say how grateful I am to friends who have been there for me.  It was hard to ask for help when I went back to my networking breakfast club because I have always done things myself.  It was very difficult to change a lifetime of “Don’t ask for help”, “Don’t impose on people or be a burden”.  Thanks to my older sister Ellen for her words “Ditch it, Girl” when we discussed it awhile back.  In many ways I have become very aware of some childhood programs in the last few months – I had no idea about specifics, I was just going on autopilot and didn’t really know it.

Outpatient physical therapy is more aggressive than inpatient – I really notice it when I am finished.  Michael puts me on the cross trainer first, just with the foot action.  It has intensity settings from 1-10, he jacked up to 8 on Friday.  So the resistance is more and I feel the workout in my legs.  I think he plans to have me all the way up to 10 by the time I leave.  He is helping me with balance and strength as well as being a bit faster in my movements.  We are doing moderate difficulty on “Stomp the mole”, it is a 9 square grid and when amole pops up, I have to move my feet to the proper square to stomp it.  They also have a mouse that moves from one square to another and they are also to be stomped.  However, not the lady bugs, but they tend to get stomp unintentionally – I don’t always  notice them while trying to get the mice and moles.  He isn’t really concerned with my score, he wants me to be able to step from one square to another a little faster each time so I have a more smooth movement.  Mostly when I feel I have loosened a tight muscle and it is comfortable again, Michael finds another couple I didn’t know I had.  Like everything else, it is a process.  Glad to be at this end than just starting to stand and walk again.

What A Difference A Week Makes

May 17, 2012

I have been living in a hotel for three weeks while our bathroom is remodeled.  It will have a stall shower, higher toilet, new sink and vanity, a lot more light and even an exhaust fan.  Unfortunately the hotel is costing more than we planned and also the stay for my Mom at the adult family home.  I am hoping we can all come home Saturday.  In the last 12 or 13 weeks I have spent 3 or 4 days at home, so in some ways it doesn’t feel I have been home at all.  However, since my fall and broken hip on February 24th, I have been able to walk again after 8 weeks of rehab and 2 weeks of out patient physical therapy.

Last week in therapy they started me walking with a cane and on Tuesday Michael wanted be to bring a cane for the next day.  My good friend Carol has been so great at taking me to therapy and breakfast club plus we stopped at Walgreen’s to check out canes.  Now I always thought if I ever had to use a cane, I would get an elegant, cool one – not this time.  However, I will be on the look out for a cool one from now on until I find the one that hits me.  Even so, the one I chose is good looking and sturdy, plus I can always bling it up a bit.  So now I am using the cane to walk around the hotel room – Michael wants me to get used to it and use the wheely walker for long trips or going into the grocery store.  it feels so good to be less encumbered, I even find myself walking without the cane in my room.  I still walk like Walter Brennan without a cane or walker – but it feels a little less than before – or is that wishful thinking.  I want to feel more confident with the cane before I go out in public with it – the walker makes me feel a little more secure at this point.

The other surprising thing is finding myself doing something I haven’t done for a long time – I was drying myself off and didn’t realize I had my foot on the toilet to dry my leg – it was as if my body took over and knows what she can and cannot do.  It felt so good!  I think I am more adventurous now instead of being timid when it comes to moving.  I can now turn over on my side and I even sleep on the right side – the repaired side.  I am also sleeping better the past few days, I don’t toss and turn and change positions so much.  I am sure Eddie will appreciate that since I kept waking him up when I had to move.

I am also more flexible and loose than I was – not hard to do since Ihave been very tight for quite awhile.  I want to find a very beginning Tai Chi class that also teaches the mind, body and spirit connection – it will be gentle but help me to loosen up all my tight muscles and tendons so I am more flexible.  I want to go back to my deep tissue massage as well as start back with my chiropractor – she helped open me as well and I miss not working with her.  And of course, it  is long past time to do something about my weight – I want to wear my clothes again and take some weight and stress off my joints.  Since I didn’t have much in the way of sugar for 8 weeks, it is a good time to let go of sugar and sweets.  I realize I have mostly gained belly fat – not easy to admit – though I see it in other places as well.  I had decided when I turned 60 that the last third of my life would be different – at 65 I see a lot of changes I have made in the last five years.  Always more to work on and not always comfortable, but I am determined to be the best I can be.

Two Weeks Out of Rehab

May 12, 2012

It’s been rather an upheaval since I came home from rehab – though today is a stellar day because it is our 43rd wedding anniversary.  When I think about what I was doing 43 years ago, I realize how young and inexperienced I was even though I thought I was terribly mature.  I often wonder how I would have handled living in Australia if I had today’s knowledge and experience.  It certainly made me grow up, plus Eddie and I developed a closeness in that tiny farming town that has lasted all these years.  Our life together has been interesting and challenging, I am so grateful Eddie chose to stay when I was diagnosed with RA, as well as all the other things we have had to face.  There are other men who would have left because they weren’t willing to deal with any of it.  So this is a doubly lovely anniversary.

When I left rehab, I came home to the house – I wasn’t sure how it was going to be getting around the house with the walker.   It turned out better than I expected, though I was moving very carefully and slowly.  Unfortunately I had been away 8 weeks and Mom had forgotten I lived there – also mostly had forgotten who I was.  For the next few days she seemed to treat me as if I was made of fine porcelain or spun glass, constantly asking if I was all right.  On Sunday we all packed up and left the house so Brad could start demolition in the bathroom.  We found an adult family home for Mom and I am living at a hotel at the airport – Eddie spends some nights with me and sometimes sleeps at the house – there is water for the bathroom downstairs.  However, we haven’t told Mom that because she would want to come home too.  She is not happy about being at the adult home but there isn’t anything we can do about it.  It looks as if it will be the end of next week before we can come back to the house.  We hated telling her when we saw her yesterday afternoon, she is bored and not happy there.

I am here at the hotel mostly by myself and no car – I can only go out if someone gives me a ride.  It’s hard to be dependent after being able to go and do whenever I want when I want.  Carol took me to Breakfast Club last Wednesday and this week after Breakfast Club I went to outpatient physical therapy.  Tuesday Pat Murray took me to my first outpatient therapy – driving a honking great Suburban that I had to climb into.  Then he picked me up in a VW Beetle – he had to pull me out of that one.  It was a bit hard asking for a ride but I have found they are are all quite happy to do it – they are true friends.  It was fun to go back and see friends at the gym, though it felt a bit different since I could leave when I was finished.  Tony did an assessment and I scored well on it – still things to strengthen and do so I am not dependent on the walker.  He had me walking without my walker – I did warn him I walk like Walter Brennan.  Unfortunately he didn’t know who that was, so I had to explain.  I did okay, then he had me walk with a cane around the circuit – out one door, down the hall and in the other door.  Rather an interesting experience.  On Wednesday I was working with Michael, helping me with balancing and strength along with stretching.  I don’t want to use the wheely walker for the rest of my life all the time, so I am determined to work as hard as possible to go on my own steam.

Staying at home was not as difficult as I thought it would be – Mom’s caregivers came and that made a big difference.  I want to continue that as long as possible so she has things going on for her and I can have some quiet time.  After 2 weeks in a hotel with no way to get around, I am frustrated as all get out, tired of feeling useless and helpless because I can’t drive and accomplish some things so Eddie doesn’t have to do everything.  I will see the surgeon on May 23rd, I hope he will give me the okay to drive.  I also think I may have to practice a little before  going out in traffic, it has been almost 3 months.  Yes, I know This Too Shall Pass, I’m just impatient for it to pass.

Eddie comes by most days after work, sometimes he is so tired and just sacks out at home.  It feels as if there are so many things that need to be done that we are running from here to there.  We seem to spent time eating out a lot, not the way we usually eat.


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