Posts Tagged ‘Orencia’

A Very Oddball Week – Part 2

July 8, 2013

This has nothing to do with my week except that I really enjoyed seeing Candy’s photos of the blue heron at Lake Radnor.  She sees all kinds of interesting subjects for her photos.

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I went in for my rheumatologist and infusion Tuesday at 10.  The test show a small reduction in inflammation and she is encouraged.  Since the Orencia has to work its way through 42 years of RA, it will take a bit longer for me.   I told her I was looking forward to having more energy – unfortunately that is the last to happen  It is always very pleasant at Infusion, I didn’t get my corner suite this time, they were quite full.  However, every cubicle has a view west, sometimes I can see in between the buildings to the harbor.  I usually relax, read my book and it seems in no time, I am done.

I came home for lunch and then went to see Mom.  She was in the dining room and I brought her cookies – she loves cookies.  She doesn’t walk very much because it hurts her knee, it is probably some kind of arthritis.  If she goes from walker to wheelchair, she will never walk again. so they want her to walk for as long as she can.  Judy thinks the reason she doesn’t like to go from bed to table to bed is because she knows it will hurt.  Fortunately they are watching her progress and there may come a time when they could give her something for it.  I don’t like the idea of giving her a lot of meds, but I also want her to be as comfortable as possible.  This time I had a lot to tell her.

Wednesday was Breakfast Club for me; Eddie wasn’t going to the archives and decided to sleep in rather than go with me.  he has been weeding the garden beds and has found it hard work, but he is pleased with the results.  He also helped Brad and they had time to talk together as well.  I came home and then we went out grocery shopping.  The weather has been more comfortable, low 80’s instead of 90.  When Brad was ready to leave, he and Eddie put the fridge back where it belongs – another reason for keeping the cardboard on the floor.  Once he is finished, we will take it up and  I’d like a support rung by the sink.

We went to Macy’s on Thursday to buy Eddie a couple of pants for work – he said he is messing up his good trousers at work.  He found two pair, but had to come back Friday for the tailor to soften the legs.  Mostly we started moving into the kitchen – slowly while we decide where we want to put things.   It feels the way our other houses felt, can’t wait to paint the rest of the upstairs so it feels more like the houses we had as well.

We also went to Lowe’s for some shelf liner and a couple of other things because we decided to slowly move into the kitchen.  After a few days, some of the places we put things aren’t very convenient, living with it for a while helps us know what works and doesn’t work.  It was a very noisy night, plus the night before was also .  All those firecrackers, fireworks and especially the bombs  – all going off until the wee hours of the morning.  Sometimes it sounded as if it was going off just outside our door.

Friday morning I had some things to do here – I finally have the project for the vintage aircraft museum shirts in the works and the pins were delivered Friday afternoon.  I have also been working on an order for new volunteer pins for the Museum of Flight – I think I made a huge Ooops, I will know for sure tomorrow.

In the afternoon I bought some sugar-free lemon pound cake for Mom and her  housemates for dessert that night.  I didn’t visit with her because she was fast asleep – looks as though visiting in the morning is better for her.  Judy tells me she has been sleeping a lot – sleeps until about 5 a.m., then has a nap after breakfast and a nap after lunch.   Some days she is feisty and doesn’t want them to do anything, other times she is very wiling to have a shower and get dressed.  Maybe it is because of her knee.  She did say Mom’s appetite is a little less, but she is always ready for cookies.

Friday night we went to dinner with Vickie and Rich.  They wanted to see the new kitchen and the bathroom – they admired it a lot.  We went to Il Fornaio in downtown Seattle for dinner and had a wonderful time.  They are such great people – Vickie is our insurance agent, a very close friend, a client, a great resource and a wonderful person.  I am so glad she accepted my invitation to Kent Breakfast Club – I knew her from BPW, so I knew her and how she did things.

Saturday we slept in, went to Whole Foods, then over to Macy’s for the tailor.  It was lovely to relax, I was feeling really draggy, so I had a lie down after we came home, I might even have slept.  I felt a lot better after my nap.  Must be the week catching up with me.  I felt the days all scrambled up this week, I kept thinking it was another day than one it was.  I may not have know which way was up, but this little guy certainly did!

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Tuesday – Day 2

May 9, 2013

A machine to measure bone density to check for...

A machine to measure bone density to check for osteoporosis in the elderly and other vulnerable subjects. (Photo credit: Wikipedia)

Tuesday I was feeling down  when I went to see my rheumatologist and have my infusion.  I had good news, my blood work shows the sed rate and inflammation was down a bit – she said it would take about 3 – 6 months to really see the difference.  I also said I was feeling a bit better, nowhere specific, just a general feeling better.  She is quite pleased.  She wants me to do a bone density scan when I see her in four weeks – so I do the scan, see her since she will have the results and then do my infusion.  Another doctor day.

It had been cloudy all morning, so it felt good to see a bit of the sun.  I went over to see Mom when I was done at the Polyclinic to see her.  I parked the car across the street, a bit on the grass, and the next thing I know, there’s a guy yelling at me to get off the grass – not just once or twice but many times – ranting in between.  I was stunned by such unexpected shouting.  I had not even had a chance to move in the car and I suddenly felt caught up in a childhood program.  I am sick to death of being told what to do and there was a stubborn streak coming out in me.  I moved the car not to where he told to, but against the fence of Mom’s house – a little passive aggressive mode.  I felt powerless in that moment.

I went in  to see Mom and found she was sound asleep – for whatever reason, she didn’t sleep the night before and was making up for it, so I didn’t wake her.   I told Didi what happened outside and she said he has a major alcohol problem and is like that with everyone.  I wished I had had a comeback at the moment, I only thought of it when I was near the house.  I told Didi I wished I had said “Blow it out your ear, a**hole!” but couldn’t think of it.  She said he needs to be told that.  What I did was as I left, I went by his car, rolled down the window and told him “Don’t you ever speak that way to me again!”.  He was ranting again and I told him to blow it out his ear and then I left.  I realized he had a louder voice than I do, so I was not going to get the upper hand – I wanted that so much.

As I drove away I found myself very upset and wanting to cry, I didn’t like the way I felt or behaved, that’s not how I want my being.  I thought about it all the way home and realized ego was in there with her two cents, wanting the upper hand and being right.  Well, Dr. Phil often asks people “Do you want to be right or happy?”.  I know she is protecting me and wanting to keep me safe – now I realized I needed to thank her for her care and tell her I choose something else.

There was so much churning around in my mind and as a result, in my body as well.  This is not the way I am becoming, it would have better for me to have sat in the car to center and ground myself and release the negative energy before going to see Mom.  I brought that negative energy into the house and I have kept it in my body as well.

I am beginning to realize what was happening – after the fact – and recognizing the programs and reactions that have been so automatic.  I haven’t been very good company lately, such familiar programs and reactions but only recognizing them better and better.  I have not done much of anything to change the situation and my response to it.  I am definitely a work in progress as I continue to notice programs coming up and thank ego for sharing but I choose something else.

Highlights From This Week

March 10, 2013

It is now the beginning of a new week and as I look back on last week, my first thought was that nothing earthshaking happened.  I have been spending my time lately not doing a whole lot, I just want to sleep and work out this fatigue until I finally reach the last layer.  However, as I was in the shower this morning, I started thinking about a couple of things that happened.

Friday was an eventful day, I went to pick up Mom at 9:15 so both of us could have haircuts.  I know it was a bit early for her, but she was having breakfast when I arrived.  Apparently Judy didn’t tell she was going to have a haircut, that must have been why she said Mom aaas moody.  Mom couldn’t understand why she had to get up early, but the day actually worked out fine.  We had a lovely sunny day, it was such a treat to see and feel the sun again.

We went to see Michelle and I had the first haircut.  I asked Michelle to cut mine a little shorter on the top – so it is shorter than it has ever been.   I also wanted Michelle to cut Mom’s hair shorter in the back because last time she wanted it longer – it is harder to fix for Judy and to be honest, she has had that neglected look.  She is definitely not neglected.   Her silver hair was beautiful and she agreed it felt good to have it cut.

As I was writing the check, my cell rang – it was Kathy, she was at Fred Meyer and wondered what I was doing.  I told I had Mom with me and she suggested meeting us there to say Hello.  I told Mom but she didn’t really know who I meant – I knew she would recognize her when she saw Kathy.  Kathy took care of Mom a lot before she went into the Elderplace program, they developed quite a bond.  Mom was delighted to see her for a few minutes.

I took her back to the house, this she wasn’t disappointed it wasn’t here.  I had promised her a cheeseburger for lunch; I left to pick up Whopper Jrs and some fries – I decided to get her slice of apple pie because it is her favorite.  We ate lunch together and then I left to relax for the afternoon.

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http://www.cartoonresource.com

Later in the afternoon I had a call from my rheumologist’s office, Jennifer said she checked my insurance and they will cover Orencia.  She says I have amazing coverage for my Medicare supplement – so glad I went with Vickie and State Farm!  I have an appointment to start it at 1 on Tuesday – I’ll visit Mom in the morning.  It is an infusion for about 45 minutes – I figure it may take a little longer to get things set up the first time.  Then I have an appointment with my rheumatologist at 10, then go up to the Infusion Room after for the next one.  It will be another 2 weeks for the 3rd one and then it will be every 4 weeks.  At the moment I am not scared nervous or apprehensive, more curious than anything else.  I figure to take it as it comes and see what happens.  I am also not excited and having high expectations either – working on keeping neutral and no emotion.

Also, there are two new people at Mom’s house – John with the cat left and Jennifer went to hospital and then to a nursing home close to her sister.  I have seen Mr. Byrd but not spoken to him because he is usually asleep in his chair.  The new woman is in a wheel chair and  although I smiled and waved to her, she didn’t really respond.  She too is in a wheel chair.  As time goes by it will be interesting to get to know them.

I have been asked to join the neighborhood bridge group as a permanent member.  I said I would and we are playing on Monday at Claire’s.  That means one of these days I will have it here – I’d like to have the new kitchen and possibly the upstairs painted, plus our own furniture.

We have been slowly cleaning out, though if you saw the house right now, it doesn’t look that way.  I have the office to clean out and organize as well as going through papers and things of Mom’s.  I have been putting it off because it feels awkward and if she knew she would be upset.  Mostly it has been a bit here, a bit there, mostly in the kitchen and a little in the desk.  It has been strange going through some things and deciding what to keep and what isn’t necessary any more.  I have that pack rat mentality that I might need it some day.

I definitely did things for myself – I saw Dr. Cheryl my chiropractor on Monday morning and had my massage with Debye on Thursday.  A lot of the time I didn’t feel like doing anything, so I just took it easy and relaxed.  Little by little there are  small bits of energy and look forward to bursts and a lot of energy again.

I am interested in what you have to say,  I definitely want to know.


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