Posts Tagged ‘infusion’

No Idea For A Title

November 2, 2014

I just realized it has been a week since I posted – not a lot to write about that is interesting.  I’ve been going through the days, often not sure what I need to be doing.  That ugly word “Should” tends to creep in and I am not boarding that bus voluntarily.  I heard an intuitive talk about letting go of the past programs rather than keeping them playing in a loop in my head.  What a great idea!  I have spent too much time and energy with several and enough is enough.  I have an appointment with an intuitive on Tuesday to help me clear a lot of the “Mom stuff” that feels at this moment as if it is choking me.

There has been a situation that my husband keeps harping on even though it is now resolved.  The last time he brought it up, I told him it is a dead issue.  Wonder why I didn’t use that a lot sooner for things I know are dead but I keep them in the mind loop.  I decided in Ike Pono I don’t board the guilt bus any more – I am only responsible for me, not anyone else.  I have finally learned that no matter how small I play, it never makes anyone else feel secure.

Last Monday on my show I talked about the gifts from Mom’s dementia experience – I wasn’t sure if I would get drippy, it worked out fine.    Late in the afternoon I heard the buzzer on the back door – a fellow bearing flowers.  It was a gorgeous bouquet of white lilies, roses, stock and I am to sure what else.  It was from the Breakfast Club.  I had already received a card from them on Saturday – signed by everyone.  Such wonderful friends and colleagues!

SAMSUNG DIGITAL CAMERA

SAMSUNG DIGITAL CAMERA

Tuesday I looked at my calendar and realized I had missed my infusion the Thursday before – I don’t think I looked at my calendar at all last week.  So I called my rheumatologist’s office to see if they could fit me in the next morning after Breakfast Club – they could.  I also asked if I needed to change my next infusion because it would be only 3 weeks in between.  I was ready to go to my regular doc and realized it was 9:00, not 9:30.  By then it was 9:15, so I called his office.  Turns out he hadn’t come from the hospital yet and had 2 other people waiting. So we rescheduled for Wednesday afternoon.

I had coffee and lunch with my friend Patti – we hadn’t met for quite a while and it was good to see her.  I was dragging and spending time with her helped me so much.  I have a very boring life next to her, if it isn’t her house, her family, her business and computer – it is her neighbors.  Sounds a bit like a soap opera.  She has been through taking care of her Mom as well, so she had some good advice and insight.  Also, she is in the same business of promotional marketing, though she specializes in gold mining supplies.  I have learned a lot about gelding from her.   I hope she benefited as much as I did.

Wednesday was medical day – I went to Breakfast Club, then to my infusion, then to my doc in the afternoon.  My doc is a little concerned about me and dealing with Mom’s death.  He has offered to give me the name of a really good grief counselor if I need it.  I  like to wait for a bit to see how I do – he wants to see me in a month.  I may take him up on his offer.

Thursday I spent at Apple first at the Pages Group Session, then a One to One about podcasts and putting them on iTunes and my website.  I seem to give Larry a challenge when we do a One to One.  I need to make another appointment so he can figure out the RSS code and how to apply it to my stuff.

Back in a bit.

I took advantage of the sun while it was out to take pictures of John’s handiwork.  It has been raining, often pouring so much, there hasn’t been much sun.  John and his crew worked in the rain – it had almost stopped when they were finished.  This way there is more light to really show what they did.

SAMSUNG DIGITAL CAMERA

Looking down the porch to the road

SAMSUNG DIGITAL CAMERA

It may not look much different because the big trees belong to the neighbor across the street

SAMSUNG DIGITAL CAMERA

SAMSUNG DIGITAL CAMERA

Things look so much better with the ugly hedge gone.

SAMSUNG DIGITAL CAMERA

Now you can see the sidewalk to the front door

SAMSUNG DIGITAL CAMERA

Donut lilacs that dark core is rotten.

SAMSUNG DIGITAL CAMERA

The camellia was so big, too big for the space.

SAMSUNG DIGITAL CAMERA

 

Looking to the back door

Friday John Van Zanten came with his crew to give us our view back and also give some  things a hair cut.  I asked him to take out that ugly hedge by the outside stairway and then he trimmed some branches on the lilac and the camellia.  Turns out the lilac looked like a donut inside, it was rotted.  Things look a lot different now.  Also, Bob ad Delores next door appreciate the haircut for the view, it helps theirs a lot as well.

SAMSUNG DIGITAL CAMERA

There is a lot more light in the bathroom – small window

SAMSUNG DIGITAL CAMERA

It looks a whole lot different with the branches gone

SAMSUNG DIGITAL CAMERA

I want the camellia, lilac and the rhode bloom in the spring, then we will cut them and dig them up – plant something to soften the brick but not above the windows.

SAMSUNG DIGITAL CAMERA

Not sure what to do with the two camellias on the left – not really the best place for them.

I took naps for several days  in the week, I slept, then sleep well at night – still tired.   Lots of weird dreams, wonder what they are telling me.   I went to lunch on Saturday with Char, Joan and Joyce in Marysville for Lois’s birthday lunch.  It was cloudy here, but as I got near Everett and Marysville, it was foggy – cold and raw.  However, we had a lovely time and I am glad I went by the time I came home, it was too late for a nap – I could certainly have used one.

That’s my week.

A Very Oddball Week – Part 2

July 8, 2013

This has nothing to do with my week except that I really enjoyed seeing Candy’s photos of the blue heron at Lake Radnor.  She sees all kinds of interesting subjects for her photos.

1044994_624922464184784_1694488040_n

1044657_625776304099400_1549933661_n

I went in for my rheumatologist and infusion Tuesday at 10.  The test show a small reduction in inflammation and she is encouraged.  Since the Orencia has to work its way through 42 years of RA, it will take a bit longer for me.   I told her I was looking forward to having more energy – unfortunately that is the last to happen  It is always very pleasant at Infusion, I didn’t get my corner suite this time, they were quite full.  However, every cubicle has a view west, sometimes I can see in between the buildings to the harbor.  I usually relax, read my book and it seems in no time, I am done.

I came home for lunch and then went to see Mom.  She was in the dining room and I brought her cookies – she loves cookies.  She doesn’t walk very much because it hurts her knee, it is probably some kind of arthritis.  If she goes from walker to wheelchair, she will never walk again. so they want her to walk for as long as she can.  Judy thinks the reason she doesn’t like to go from bed to table to bed is because she knows it will hurt.  Fortunately they are watching her progress and there may come a time when they could give her something for it.  I don’t like the idea of giving her a lot of meds, but I also want her to be as comfortable as possible.  This time I had a lot to tell her.

Wednesday was Breakfast Club for me; Eddie wasn’t going to the archives and decided to sleep in rather than go with me.  he has been weeding the garden beds and has found it hard work, but he is pleased with the results.  He also helped Brad and they had time to talk together as well.  I came home and then we went out grocery shopping.  The weather has been more comfortable, low 80’s instead of 90.  When Brad was ready to leave, he and Eddie put the fridge back where it belongs – another reason for keeping the cardboard on the floor.  Once he is finished, we will take it up and  I’d like a support rung by the sink.

We went to Macy’s on Thursday to buy Eddie a couple of pants for work – he said he is messing up his good trousers at work.  He found two pair, but had to come back Friday for the tailor to soften the legs.  Mostly we started moving into the kitchen – slowly while we decide where we want to put things.   It feels the way our other houses felt, can’t wait to paint the rest of the upstairs so it feels more like the houses we had as well.

We also went to Lowe’s for some shelf liner and a couple of other things because we decided to slowly move into the kitchen.  After a few days, some of the places we put things aren’t very convenient, living with it for a while helps us know what works and doesn’t work.  It was a very noisy night, plus the night before was also .  All those firecrackers, fireworks and especially the bombs  – all going off until the wee hours of the morning.  Sometimes it sounded as if it was going off just outside our door.

Friday morning I had some things to do here – I finally have the project for the vintage aircraft museum shirts in the works and the pins were delivered Friday afternoon.  I have also been working on an order for new volunteer pins for the Museum of Flight – I think I made a huge Ooops, I will know for sure tomorrow.

In the afternoon I bought some sugar-free lemon pound cake for Mom and her  housemates for dessert that night.  I didn’t visit with her because she was fast asleep – looks as though visiting in the morning is better for her.  Judy tells me she has been sleeping a lot – sleeps until about 5 a.m., then has a nap after breakfast and a nap after lunch.   Some days she is feisty and doesn’t want them to do anything, other times she is very wiling to have a shower and get dressed.  Maybe it is because of her knee.  She did say Mom’s appetite is a little less, but she is always ready for cookies.

Friday night we went to dinner with Vickie and Rich.  They wanted to see the new kitchen and the bathroom – they admired it a lot.  We went to Il Fornaio in downtown Seattle for dinner and had a wonderful time.  They are such great people – Vickie is our insurance agent, a very close friend, a client, a great resource and a wonderful person.  I am so glad she accepted my invitation to Kent Breakfast Club – I knew her from BPW, so I knew her and how she did things.

Saturday we slept in, went to Whole Foods, then over to Macy’s for the tailor.  It was lovely to relax, I was feeling really draggy, so I had a lie down after we came home, I might even have slept.  I felt a lot better after my nap.  Must be the week catching up with me.  I felt the days all scrambled up this week, I kept thinking it was another day than one it was.  I may not have know which way was up, but this little guy certainly did!

422208_482834258393606_155854234_n     546505_482833385060360_1593891114_n

Highlights From This Week

March 10, 2013

It is now the beginning of a new week and as I look back on last week, my first thought was that nothing earthshaking happened.  I have been spending my time lately not doing a whole lot, I just want to sleep and work out this fatigue until I finally reach the last layer.  However, as I was in the shower this morning, I started thinking about a couple of things that happened.

Friday was an eventful day, I went to pick up Mom at 9:15 so both of us could have haircuts.  I know it was a bit early for her, but she was having breakfast when I arrived.  Apparently Judy didn’t tell she was going to have a haircut, that must have been why she said Mom aaas moody.  Mom couldn’t understand why she had to get up early, but the day actually worked out fine.  We had a lovely sunny day, it was such a treat to see and feel the sun again.

We went to see Michelle and I had the first haircut.  I asked Michelle to cut mine a little shorter on the top – so it is shorter than it has ever been.   I also wanted Michelle to cut Mom’s hair shorter in the back because last time she wanted it longer – it is harder to fix for Judy and to be honest, she has had that neglected look.  She is definitely not neglected.   Her silver hair was beautiful and she agreed it felt good to have it cut.

As I was writing the check, my cell rang – it was Kathy, she was at Fred Meyer and wondered what I was doing.  I told I had Mom with me and she suggested meeting us there to say Hello.  I told Mom but she didn’t really know who I meant – I knew she would recognize her when she saw Kathy.  Kathy took care of Mom a lot before she went into the Elderplace program, they developed quite a bond.  Mom was delighted to see her for a few minutes.

I took her back to the house, this she wasn’t disappointed it wasn’t here.  I had promised her a cheeseburger for lunch; I left to pick up Whopper Jrs and some fries – I decided to get her slice of apple pie because it is her favorite.  We ate lunch together and then I left to relax for the afternoon.

msd333ry

http://www.cartoonresource.com

Later in the afternoon I had a call from my rheumologist’s office, Jennifer said she checked my insurance and they will cover Orencia.  She says I have amazing coverage for my Medicare supplement – so glad I went with Vickie and State Farm!  I have an appointment to start it at 1 on Tuesday – I’ll visit Mom in the morning.  It is an infusion for about 45 minutes – I figure it may take a little longer to get things set up the first time.  Then I have an appointment with my rheumatologist at 10, then go up to the Infusion Room after for the next one.  It will be another 2 weeks for the 3rd one and then it will be every 4 weeks.  At the moment I am not scared nervous or apprehensive, more curious than anything else.  I figure to take it as it comes and see what happens.  I am also not excited and having high expectations either – working on keeping neutral and no emotion.

Also, there are two new people at Mom’s house – John with the cat left and Jennifer went to hospital and then to a nursing home close to her sister.  I have seen Mr. Byrd but not spoken to him because he is usually asleep in his chair.  The new woman is in a wheel chair and  although I smiled and waved to her, she didn’t really respond.  She too is in a wheel chair.  As time goes by it will be interesting to get to know them.

I have been asked to join the neighborhood bridge group as a permanent member.  I said I would and we are playing on Monday at Claire’s.  That means one of these days I will have it here – I’d like to have the new kitchen and possibly the upstairs painted, plus our own furniture.

We have been slowly cleaning out, though if you saw the house right now, it doesn’t look that way.  I have the office to clean out and organize as well as going through papers and things of Mom’s.  I have been putting it off because it feels awkward and if she knew she would be upset.  Mostly it has been a bit here, a bit there, mostly in the kitchen and a little in the desk.  It has been strange going through some things and deciding what to keep and what isn’t necessary any more.  I have that pack rat mentality that I might need it some day.

I definitely did things for myself – I saw Dr. Cheryl my chiropractor on Monday morning and had my massage with Debye on Thursday.  A lot of the time I didn’t feel like doing anything, so I just took it easy and relaxed.  Little by little there are  small bits of energy and look forward to bursts and a lot of energy again.

I am interested in what you have to say,  I definitely want to know.


Angelswhisper2011

Me and my Granny

TWO Spoiled Cats

Angel Sammy and Teddy Make TWO

Northwest Outdoors

This WordPress.com site is the cat’s pajamas

countingducks

reflections on a passing life

Universal Cosmic Consciousness

All experiences are the journey.

Sequins and Cherry Blossom

Where to see cherry blossom and other things in London

Welcome to Tofino Photography

Professional Wildlife, Landscape and Seascape Photography

Rocking This Illness: My Story of Life with Behcet's Disease

Navigating Life with an Illness that Doesn't Define Me

I used to be indecisive...

...but now I'm not so sure

livelovebegreen

making my world greener, one day at a time

LEANNE COLE

Art and Practice

Wiley's Wisdom

Joy: From the Ground Up

StickertyClick.com

" Creativity is a drug that i can't live without' - Cecil B. Demille StickertyClick, Destination for all of your edgy creative needs.

brent's iPhone & japan

what am i up to...

twocatsviews

Life as Seen by Hemingway and Steinbeck

Kalliope Amorphous

Art blog of Kalliope Amorphous

Top 10 of Anything and Everything - The Fun Top Ten Blog

Animals, Gift Ideas, Travel, Books, Recycling Ideas and Many, Many More

The Jiggly Bits

...because life is funny.

All Flared Up: An Arthritis Blog

Living Rather Than Wallowing

%d bloggers like this: