It is now the beginning of a new week and as I look back on last week, my first thought was that nothing earthshaking happened. I have been spending my time lately not doing a whole lot, I just want to sleep and work out this fatigue until I finally reach the last layer. However, as I was in the shower this morning, I started thinking about a couple of things that happened.
Friday was an eventful day, I went to pick up Mom at 9:15 so both of us could have haircuts. I know it was a bit early for her, but she was having breakfast when I arrived. Apparently Judy didn’t tell she was going to have a haircut, that must have been why she said Mom aaas moody. Mom couldn’t understand why she had to get up early, but the day actually worked out fine. We had a lovely sunny day, it was such a treat to see and feel the sun again.
We went to see Michelle and I had the first haircut. I asked Michelle to cut mine a little shorter on the top – so it is shorter than it has ever been. I also wanted Michelle to cut Mom’s hair shorter in the back because last time she wanted it longer – it is harder to fix for Judy and to be honest, she has had that neglected look. She is definitely not neglected. Her silver hair was beautiful and she agreed it felt good to have it cut.
As I was writing the check, my cell rang – it was Kathy, she was at Fred Meyer and wondered what I was doing. I told I had Mom with me and she suggested meeting us there to say Hello. I told Mom but she didn’t really know who I meant – I knew she would recognize her when she saw Kathy. Kathy took care of Mom a lot before she went into the Elderplace program, they developed quite a bond. Mom was delighted to see her for a few minutes.
I took her back to the house, this she wasn’t disappointed it wasn’t here. I had promised her a cheeseburger for lunch; I left to pick up Whopper Jrs and some fries – I decided to get her slice of apple pie because it is her favorite. We ate lunch together and then I left to relax for the afternoon.
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Later in the afternoon I had a call from my rheumologist’s office, Jennifer said she checked my insurance and they will cover Orencia. She says I have amazing coverage for my Medicare supplement – so glad I went with Vickie and State Farm! I have an appointment to start it at 1 on Tuesday – I’ll visit Mom in the morning. It is an infusion for about 45 minutes – I figure it may take a little longer to get things set up the first time. Then I have an appointment with my rheumatologist at 10, then go up to the Infusion Room after for the next one. It will be another 2 weeks for the 3rd one and then it will be every 4 weeks. At the moment I am not scared nervous or apprehensive, more curious than anything else. I figure to take it as it comes and see what happens. I am also not excited and having high expectations either – working on keeping neutral and no emotion.
Also, there are two new people at Mom’s house – John with the cat left and Jennifer went to hospital and then to a nursing home close to her sister. I have seen Mr. Byrd but not spoken to him because he is usually asleep in his chair. The new woman is in a wheel chair and although I smiled and waved to her, she didn’t really respond. She too is in a wheel chair. As time goes by it will be interesting to get to know them.
I have been asked to join the neighborhood bridge group as a permanent member. I said I would and we are playing on Monday at Claire’s. That means one of these days I will have it here – I’d like to have the new kitchen and possibly the upstairs painted, plus our own furniture.
We have been slowly cleaning out, though if you saw the house right now, it doesn’t look that way. I have the office to clean out and organize as well as going through papers and things of Mom’s. I have been putting it off because it feels awkward and if she knew she would be upset. Mostly it has been a bit here, a bit there, mostly in the kitchen and a little in the desk. It has been strange going through some things and deciding what to keep and what isn’t necessary any more. I have that pack rat mentality that I might need it some day.
I definitely did things for myself – I saw Dr. Cheryl my chiropractor on Monday morning and had my massage with Debye on Thursday. A lot of the time I didn’t feel like doing anything, so I just took it easy and relaxed. Little by little there are small bits of energy and look forward to bursts and a lot of energy again.
I am interested in what you have to say, I definitely want to know.
Gift of RA 
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