Posts Tagged ‘Rheumatology’

The 2nd Day

September 1, 2013

I planned to write this on Monday or Tuesday, amazing how things get away from me.  I had two order from clients and 3 others I am working on – I don’t remember a time when I had this many projects.  That’s where I have spent my time as well and creating the design for Eddie’s Round Up.  Then seeing Mom twice a week, doc and infusion morning Thursday and meeting a client for lunch afterwards to sign the order form.

I was telling my rheumatologist about last Saturday at the Tournament and how pleased to find the after effects weren’t very bad.  I have noticed over the years that when I have done something major (sometimes not having done anything at all) I find the day after is often pretty good – I have even had ones that were wonderful.  But there is something about the 2nd day that I have been known to crash, to be stiff, sore and miserable.  What is it about that 2nd day?  Maybe lactic acid has built up in my muscles.  What I do know is I have to wait to see how I am 2 days after the event to see how well I am doing.

I was pleased to find I was doing  pretty well Sunday – well enough to start trimming the little forsythia by the ding room window.  It had been trimmed when John and his crew took out the wisteria, sticker bush  and a few other things.  It has since sent out long branches that got to a point that I couldn’t see out the window very well.  I was careful where I stepped and did quite well, though the lower back wasn’t all that happy.  Eddie came out a little later with the big clippers for the thicker branches – together we did a good job of trimming it back.

Monday was the 2nd day and I was doing rather well.    A little stiff and sore, good thing I had an adjustment with Cheryl and a massage with Debye that day.  So I did well after seeing the two of them and just had to see how the 2nd day of the forsythia trimming would go the next day.  I was pretty good, a bit stiff in the shoulders but otherwise better than I hoped.

I remember the last weekend of Ike Pono, Saturday was Warrior Games.  I knew I had a choice to participate or just use RA as an excuse not to do anything.  I decided it was go full tilt or nothing and deal with any consequences afterwards.  I went full tilt and I was stiff and sore the next day – it does happen that way sometimes.  I was a little late on Sunday and not moving too well – I explained I decided to go full tilt and deal with repercussions later.  I had a really nice compliment from Bruce – he told me “You are someone I want in my fox hole because I know you will have my back”.

The most frustrating time is when I haven’t really done much, just taking care of myself and suddenly I am hurting and miserable.  What happened?  Did I do something?  I will admit I have not quite figured it out yet.  I do remember the first summer I was in New Jersey – my first experience with humidity.  We did have a couple of window air conditioners so it wasn’t too bad, but I was still uncomfortable.  Then in September it cooled down and was very pleasant and comfortable.  Then the 1st of October it suddenly went humid again and I felt as if I had been run over by a train.  A clue that RA and humidity don’t get along very well in my body.

I can look back now and see it in a slightly different light and wonder – what was I focusing on and was it just one of my oh-poor-me-osis times or was there actually a trigger that put all that in motion?  It is certainly easier to look back than to be in the moment feeling everything and wondering what  I did wrong.  I suspect I will continue to wonder how what I do will feel on the 2nd day, but look at it a little differently, maybe with curiosity, interest and wonder rather than feeling a victim and someone or something is out to get me.

My rheumatologist was pleased with me on thursday, my sed rate was down 2 points and I am feeling better.  Still waiting for the surge of energy, but my joints seem to be doing better and since the sed rate is down, I will go for my infusion in 4 weeks but not see her until the following one 8 weeks later.  Any time the doc spreads out the time between appointments, I know I am doing well.

These pictures have nothing to do with topic, I just thought they were adorable.  Candy took them at Lake Radnor – such a variety of things and animals to see there.

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I think this was taken in the Spring not too long after the birth.

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They are so well camouflaged you would have to be up close to see them.

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Such an adorable face!

Thank you so much Candy, they are a pleasure to see.

A Very Oddball Week – Part 2

July 8, 2013

This has nothing to do with my week except that I really enjoyed seeing Candy’s photos of the blue heron at Lake Radnor.  She sees all kinds of interesting subjects for her photos.

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I went in for my rheumatologist and infusion Tuesday at 10.  The test show a small reduction in inflammation and she is encouraged.  Since the Orencia has to work its way through 42 years of RA, it will take a bit longer for me.   I told her I was looking forward to having more energy – unfortunately that is the last to happen  It is always very pleasant at Infusion, I didn’t get my corner suite this time, they were quite full.  However, every cubicle has a view west, sometimes I can see in between the buildings to the harbor.  I usually relax, read my book and it seems in no time, I am done.

I came home for lunch and then went to see Mom.  She was in the dining room and I brought her cookies – she loves cookies.  She doesn’t walk very much because it hurts her knee, it is probably some kind of arthritis.  If she goes from walker to wheelchair, she will never walk again. so they want her to walk for as long as she can.  Judy thinks the reason she doesn’t like to go from bed to table to bed is because she knows it will hurt.  Fortunately they are watching her progress and there may come a time when they could give her something for it.  I don’t like the idea of giving her a lot of meds, but I also want her to be as comfortable as possible.  This time I had a lot to tell her.

Wednesday was Breakfast Club for me; Eddie wasn’t going to the archives and decided to sleep in rather than go with me.  he has been weeding the garden beds and has found it hard work, but he is pleased with the results.  He also helped Brad and they had time to talk together as well.  I came home and then we went out grocery shopping.  The weather has been more comfortable, low 80’s instead of 90.  When Brad was ready to leave, he and Eddie put the fridge back where it belongs – another reason for keeping the cardboard on the floor.  Once he is finished, we will take it up and  I’d like a support rung by the sink.

We went to Macy’s on Thursday to buy Eddie a couple of pants for work – he said he is messing up his good trousers at work.  He found two pair, but had to come back Friday for the tailor to soften the legs.  Mostly we started moving into the kitchen – slowly while we decide where we want to put things.   It feels the way our other houses felt, can’t wait to paint the rest of the upstairs so it feels more like the houses we had as well.

We also went to Lowe’s for some shelf liner and a couple of other things because we decided to slowly move into the kitchen.  After a few days, some of the places we put things aren’t very convenient, living with it for a while helps us know what works and doesn’t work.  It was a very noisy night, plus the night before was also .  All those firecrackers, fireworks and especially the bombs  – all going off until the wee hours of the morning.  Sometimes it sounded as if it was going off just outside our door.

Friday morning I had some things to do here – I finally have the project for the vintage aircraft museum shirts in the works and the pins were delivered Friday afternoon.  I have also been working on an order for new volunteer pins for the Museum of Flight – I think I made a huge Ooops, I will know for sure tomorrow.

In the afternoon I bought some sugar-free lemon pound cake for Mom and her  housemates for dessert that night.  I didn’t visit with her because she was fast asleep – looks as though visiting in the morning is better for her.  Judy tells me she has been sleeping a lot – sleeps until about 5 a.m., then has a nap after breakfast and a nap after lunch.   Some days she is feisty and doesn’t want them to do anything, other times she is very wiling to have a shower and get dressed.  Maybe it is because of her knee.  She did say Mom’s appetite is a little less, but she is always ready for cookies.

Friday night we went to dinner with Vickie and Rich.  They wanted to see the new kitchen and the bathroom – they admired it a lot.  We went to Il Fornaio in downtown Seattle for dinner and had a wonderful time.  They are such great people – Vickie is our insurance agent, a very close friend, a client, a great resource and a wonderful person.  I am so glad she accepted my invitation to Kent Breakfast Club – I knew her from BPW, so I knew her and how she did things.

Saturday we slept in, went to Whole Foods, then over to Macy’s for the tailor.  It was lovely to relax, I was feeling really draggy, so I had a lie down after we came home, I might even have slept.  I felt a lot better after my nap.  Must be the week catching up with me.  I felt the days all scrambled up this week, I kept thinking it was another day than one it was.  I may not have know which way was up, but this little guy certainly did!

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Tuesday – Day 2

May 9, 2013

A machine to measure bone density to check for...

A machine to measure bone density to check for osteoporosis in the elderly and other vulnerable subjects. (Photo credit: Wikipedia)

Tuesday I was feeling down  when I went to see my rheumatologist and have my infusion.  I had good news, my blood work shows the sed rate and inflammation was down a bit – she said it would take about 3 – 6 months to really see the difference.  I also said I was feeling a bit better, nowhere specific, just a general feeling better.  She is quite pleased.  She wants me to do a bone density scan when I see her in four weeks – so I do the scan, see her since she will have the results and then do my infusion.  Another doctor day.

It had been cloudy all morning, so it felt good to see a bit of the sun.  I went over to see Mom when I was done at the Polyclinic to see her.  I parked the car across the street, a bit on the grass, and the next thing I know, there’s a guy yelling at me to get off the grass – not just once or twice but many times – ranting in between.  I was stunned by such unexpected shouting.  I had not even had a chance to move in the car and I suddenly felt caught up in a childhood program.  I am sick to death of being told what to do and there was a stubborn streak coming out in me.  I moved the car not to where he told to, but against the fence of Mom’s house – a little passive aggressive mode.  I felt powerless in that moment.

I went in  to see Mom and found she was sound asleep – for whatever reason, she didn’t sleep the night before and was making up for it, so I didn’t wake her.   I told Didi what happened outside and she said he has a major alcohol problem and is like that with everyone.  I wished I had had a comeback at the moment, I only thought of it when I was near the house.  I told Didi I wished I had said “Blow it out your ear, a**hole!” but couldn’t think of it.  She said he needs to be told that.  What I did was as I left, I went by his car, rolled down the window and told him “Don’t you ever speak that way to me again!”.  He was ranting again and I told him to blow it out his ear and then I left.  I realized he had a louder voice than I do, so I was not going to get the upper hand – I wanted that so much.

As I drove away I found myself very upset and wanting to cry, I didn’t like the way I felt or behaved, that’s not how I want my being.  I thought about it all the way home and realized ego was in there with her two cents, wanting the upper hand and being right.  Well, Dr. Phil often asks people “Do you want to be right or happy?”.  I know she is protecting me and wanting to keep me safe – now I realized I needed to thank her for her care and tell her I choose something else.

There was so much churning around in my mind and as a result, in my body as well.  This is not the way I am becoming, it would have better for me to have sat in the car to center and ground myself and release the negative energy before going to see Mom.  I brought that negative energy into the house and I have kept it in my body as well.

I am beginning to realize what was happening – after the fact – and recognizing the programs and reactions that have been so automatic.  I haven’t been very good company lately, such familiar programs and reactions but only recognizing them better and better.  I have not done much of anything to change the situation and my response to it.  I am definitely a work in progress as I continue to notice programs coming up and thank ego for sharing but I choose something else.


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