Posts Tagged ‘dementia’

Still Looking

September 23, 2012

I have been able to take a little time off from calling places since I had a talk with Denise, the social worker.  The places I told her about and the ones I sent to her didn’t turn out very well – one would take Mom but wanted us to subsidize her – I don’t think so!  The problem is the new regulations Providence put into the system this year, the homes aren’t going for it.  Denise said she has seen a trend and that means not only is it more of a challenge for me, it will be a challenge for those looking after I find a place.  So she said she would talk to her director and see if there is some leeway.  So we talked again Friday and said she could see a trend and possibly have to find new homes to work with – plus she does have a little leeway for Mom.  She wasn’t specific and I didn’t ask.  She is on holiday until next Thursday, so I have some time off to relax and go to my NWPMA Pro-D day and Showcase.  I haven’t done much in the way of business with my promotional marketing, so this is an opportunity to see friends who are distributors and suppliers.

I was surprised to receive an email from Denise at the end of the day Friday – she had the name of a home that will take Mom.  Denise hasn’t seen it, so Eddie and I going this afternoon to check it out with Kathy.  It’s in the same neighborhood of the one that wasn’t – a few blocks north.  I haven’t really thought about it, just taking it as it comes rather than getting my hopes up or putting any emotion into it.  We’ll check it out and go from there.  If this isn’t quite right, then I will start calling again on Wednesday and send the promising ones to Denise to clear before I go to see any of them.

It is a relief in some ways not to have to call for a bit, it can be discouraging though most people are quite friendly and easy to talk with about it.  I know they need a certain level to operate and of course they would much rather have private pay.  But Providence supplies everything for their clients, all the home owner has to do it let them know.  Plus all go to the Center at least once a week so the doctor, nurse and therapists see them and check anything that is out of the ordinary.

I am finding myself starting to shut down with Mom, it is so hard to understand what she is trying to say when she only has the first 5 words of her thought – then she can’t remember or get the words out and it is very frustrating on both sides.   When she asks questions like “Why am I here?”, “How do I get out of here?” or  “is my mother here?”, I am at a loss for an answer.  I haven’t a clue what to say and I can’t imagine how it is for her.  She seems so lost and confused, not understanding what is going on a lot of the time.  I am glad to say she is fine going to the Center, I haven’t heard her say “I’m not going back there again!” for a while.  Now she asks everyday and evening if the bus is coming to take her to school.  Last night she asked if what she was wearing was okay to walk in the parade today.  I have no idea what she means or what parade, but I told it was fine.  She hasn’t said anything this morning about the parade, about what I thought would happen.

When I am in the office, she will tell the caregiver she needs to talk to her mother, sister, aunt, grandmother – you name it.  So she comes over to the door and I say hello, not sure who she thinks I am.  If the caregiver says I am her daughter, Mom’s response is “I know”.  More often lately she has been asking if her mother is here; when I tell her no or that I haven’t seen her, she asks if she is dead.  I hate to say yes, because it seems it is sudden, upsetting news to her.  Then I tell her that her mother is watching over her and waiting for her to make the transition.  Maybe it is too much information – I’m not sure how to handle it.

I realize I have learned a lot about this dementia, but it doesn’t feel as if I have practical things that help Mom.  I tend to go off to the office or bedroom and allow the caregiver to be with Mom – is that hiding or making it easier for the caregiver to do what she needs to for Mom.  Today she is quite happy with Aster, it is a good change since often she seems unhappy with whatever caregiver is here.  Every day is different.

Dementia and RA

September 16, 2012

I have been wondering over the past few weeks and months as my Mom has been slowly going deeper into dementia – how much  has taking care of her and dealing with the stress and frustration impacted the RA and my body.  What differences will I notice once she is established in a good adult family home?  I know it means there are still things to take care of, to keep watch over, etc.  Will there be less stress, less pain and  less difficulty moving?  One thing I think will be better is that I will finally be able to rest and have some energy again.  I have been feeling bone weary for quite awhile and no way to really sleep well at night to re-energize.  I’m not sure how long it will take to really rest, but not having the day to day difficulties and frustrations will certainly help.  Also knowing she won’t be walking around and suddenly come into our room and wake us up out of a sound sleep will help a lot.  A few months back we were sound asleep and suddenly she came in at 2 a.m. flashing a flashlight in our eyes.  She kept asking “How do I get off this boat!”.  That came out of left field and I am happy to say she hasn’t done it again.  It may take some time but I won’t be wondering if she has fallen in the middle of the night or during the day so I have to call those very friendly fellows from the Fire Department to get her up on her feet again.  And it will be so nice not to have to suddenly cancel my life because she needs something.

I have had neck and shoulder problem since March of last year – at times it is better and other times it really hurts.  I tend to say it is computer and too much mother – there may be more truth in that than I realize or would want to admit.  I know my Mom  can’t help what dementia is doing to her; I have probably not handled as well as I could have – it has been a learning experience for both of us – I wonder how much has registered with her.   I am not going to second guess myself and beat myself up because I wasn’t perfect – I did the best I could with the knowledge I had at the time.  It is constantly new territory, sometimes I do well and other times I have allowed emotions to rule; doesn’t come out that well when that happens.

I suspect I am tight in my muscles, tendons and ligaments as well as in the joints or how I hold myself.  I feel as if I have spent my life “bracing for the onslaught” – though I can’t honestly remember when I first felt that.  So I have probably held myself tightly most of my life, definitely not conducive to relaxing and being at ease.  Lately I have noticed I get a bad pain in my left hip – I can tell it is from Mom and I have allowed her to control my  choices.  Also, the left is the feminine side – go figure!  She has been a major, controlling figure all my life and it isn’t easy to change gears at this time of life.  But By George, I am doing it!  My Dad would say “By The Lord Harry!”.  I was very pleased and  flattered that Debye tells me how she admires me for doing this work at 65 – too many people have given up by then and think themselves too old.  I decided when I turned 60 that the last third of my life was going to be the best – I knew it meant changes and as uncomfortable as it has been at times through Ike Pone, massage with Debye and the other things I have done and learned, it has been worth it.  I have this need to understand and “Know that I know” who I truly am and love, accept, approve and trust myself completely.  I am getting there but I expect it to be a life long journey – I am a work in progress.

I will admit I feel I have been doing this with Mom for so long that I don’t remember what life has been before coming here 10 years ago.  Any more than I can remember age 23 and younger when I didn’t have RA.  It feels as if I have always had it; the difference is that I am not seeing myself as victim any more – an innocent by standing minding her own business and sideswiped by RA.  Strangely enough, I am learning that it may not have been something that started in this lifetime, that it has been from a past lifetime.  In my massage with Debye and also time with Monty I have learned I was a Roman soldier in another lifetime.  Thursday Debye had a picture of his leg hurt – I could picture it myself.  Yes, I know it sounds woo-woo and goofball to some, but  in some ways it makes sense to me.  As that soldier, I imposed my will on others and there has to be an energy balance for that – karmic balance.  I am still learning, but in many ways a lot of what I am learning gives me different angles on having RA.  I am determined to understand what happened and is happening as a way of  creating a healing.  Call me crazy if you want.

Waiting Isn’t Always Easy

September 6, 2012

This came from the Universe today – I could have used it earlier but no doubt this is just the right time.  I have been apprehensive, concerned, scared and unsure in finding an adult family home for my Mom; this has really hit home for me.

Lee, when you move, I move. When you reach, I reach. And when you go the extra mile, I clear the way. But not a moment sooner.

Which is why before you move, reach, and go, things sometimes look so scary. 

 Just like that,

    The Universe

Lee, “I do” if “you do.” Settled? I now pronounce us unstoppable.

I so appreciate the daily note from The Universe during the week – so often it is spot on to what I am thinking, doing or wondering about in my life.  Certainly finding a place for my Mom has been one of those very uncomfortable situations; I am so grateful for The Universe already creating the solution (even though I wasn’t really sure) and all the people who have been helping me all along the way.  I am so glad I don’t have to do it all by myself – I would be bouncing off the walls a rubber room by now.  I have had help from Providence, Kathy has been a great help and Eddie as well.  When it comes to Mom’s financial and business affairs, I have had a lot of help from my Networking Breakfast Club – Dave our elder law attorney, people who know about houses and property, others who have had to deal with the same kind of situation, caregivers, etc.  I have such support from friends and family to help me take care of myself and have a more objective view of the situation – I am still on the emotional  end of it, not as much but still there.  Plus God, angels, spirit guides and master teaches to help and guide me.

Monday on Labor Day I called around and found one place with an opening.  Eddie and I went down there and spent almost 2 hours with Jaswir.  (She said I was the first one to pronounce it properly.  She goes by Jas)   This is a double wide manufactured home that has room for 6 people.  The room Mom would share is what used to be the master suite, so it is larger and has a bigger closet, and a bath they both share.  Her room mate is a woman with Dementia, though quite articulate and friendly.  The other woman seem to be at about the same level of function as Mom and they interact with each other.  They eat together and there is a covered back porch as well as a nice area in the front they like to sit – Jas said they love to be outside when it is sunny.  I had a better feeling about this home and arranged for Kathy to come and see it with us yesterday.  I was pleased that she liked what she saw and when she talked to Jas – she can see and notice things that I don’t know to ask.  So today Jas is going to meet Mom at the Center and assess her level of function and the Providence records.  She has worked with them before and knows Mom’s doctor, Kathy thinks that is a real plus.  So I am hoping they can reach an agreement.

This is where I really have to let go and put it in God’s hands – this or something better.  I am not anxious to go calling any more, but I willing to do it if it is necessary.  Yesterday was attorney and mortgage day – we talked to Dave and Tom to see the options for the house and what will work for us.  No decision but now we are checking to see if refinancing with a loan of our own and some extra to fix it up is in our budget.  Brad came by and we explained what we are thinking of doing, he will now give us and estimate and see how that fits with a loan with a reasonable monthly payment.

I want the whole things settled right now, but it is a time of constant patience because so much of it depends on other people doing their job.  It is hard to be patient, I’m doing my best.  This has been a time of learning and growing – not always a comfortable process.  I have been learning about myself as well as about Dementia; it seems to be more clear at times when I look back at what has just happened.  I am realizing a lot of childhood programs and triggers, plus seeing how I have been influenced in my adult years with out realizing it.  Now it seems as if I am growing stronger and more adult as Mom diminishes and is weaker.  She has always been a very strong influence on my, maybe when she is gone I can finally be myself.  That is what my friend Kathie Brodie found after her mom died.  The other important things she learned what what her mom was teaching her – it was never clear and when she talked to another friend who talks to angels, she finally understood.  It was her aunt who said she could now be herself.

It truly has been an uncomfortable time, that means I have been and am growing, stretching and learning.  Truly out of my comfort zone.  Several friends have told me that I will be glad I was here for my Mom. that I will have no regrets.  I admit I  regret I have not been as patient as I wanted to be, it has been hard to be with her as a friend – I am hoping when she is settled in her new home that we can have a more enjoyable relationship.

Someone’s Life In My Hands

September 2, 2012

It is scary to realize I have to decide the direction my Mom’s life will take.  It is a big responsibility and I want to do what is best for her and for us.  My biggest fear is making the wrong decision about what adult family home will be her new home – I know it has to be done and I am looking for the place that is the right fit for her.

The program I enrolled her in at Providence has done a great job of providing so much – a day center to interact with other people, all her medical care, supplies, help in finding a place for her, pharmacy – it is a great program.  I have gone to see three adult family homes, the first was okay but had a lot of drawbacks even though the owner is known for her patience and good care of dementia patients.  The second is a good potential place, still some questions to answer.  The third was okay but a bit far out from us and not quite as nice as the second.  However, the woman who owns it is good with dementia patients where the second is a somewhat unknown quantity.  But I need to look at others and let’s face, labor Day weekend is a bit difficult to find people home.  I have looked through the list and made notes, so I now have to at least drive by and see how they look.  Some have a picture of the front, but not necessarily very clear or angled for a proper look.  I also used the satellite photos as well, I could see fairly close and tell if they have a back yard, how big the house is, etc.

This all makes me very uncomfortable, I know being uncomfortable means out of my comfort zone, stretching and learning; I’ll be honest, I would rather have someone else do it.  But it is my responsibility and I need to make sure it works for Mom.  I feel as if I am between a rock and hard place – it’s getting very difficult to have her living here but it is difficult to work on the process of finding her a place to live.  I get that tickle of fear in my stomach and want to be anywhere but here.  Yet I know God has already created a solution that works and I am working on letting go and allowing the solution to emerge.  It isn’t easy because I keep obsessing about the whole thing because I don’t want to “get it wrong”.  I feel sharp pains on my left side from my spastic colitis  as I think about what to do and where is best.

My life would be a lot easier and less stressful with Mom in an adult family home.  I can’t give her the care she needs and to be honest, I don’t have any patience left.  I have to cancel my life to accommodate her or to do the things that are necessary – doesn’t leave much time for my life.  My business is down the tube because of it – though the broken hip didn’t help either.  She goes to the Center 4 days a week, but that doesn’t leave me a whole lot of time to do much.  And if she isn’t ready for the van, as happened last week, I had to take her over – there went my day alone because I also needed to talk to the social worker.  By the time I got home, I only had time for a nap.

I am at the end of my energy, I am tired physically all the time and as for mentally and emotionally, I am so weary and getting close to the end of my rope.  It is very energy and time consuming even with care givers here, I couldn’t do it without then. I tell them every time how much I appreciate what they do and thank them for being here – I also had quite an education when I was in rehab.  I told all the caregivers thank you and how much I appreciate every thing they do.  After a bit I would ask if they were tired of hearing me say it; most often they said they weren’t tired of hearing it, it made up for those who never said anything.

I have started reading a book called “Contented Dementia”, recommended to me by my caregiver counselor.  Yes, I have one and we met last Wednesday.  I have seen her several times, her job is to be there for me and help me understand what is happening as well as solutions to situations I don’t know how to handle.  She thought this book would help me especially in understanding more about what is going on as well as how to answer some of those questions Mom asks and I don’t know how to respond.  Lately, Mom has asked about my Dad and was really upset and unhappy when I told he was gone – it was as if she had not heard the news before.  Wow! does that make me feel terrible!  She now asks where her parents are, so I am learning to say they are here.  If she asks where they are, I tell her they a far away.  She has asked me where my mother is – the first time I told her she is my mother.  You would have thought I had hit with a cattle prod because she looked so shocked.  Now I have learned to say my mother is at home.  If Mom asks where, I just say she lives close by.

Every day is different and I wonder what the day will bring – something funny, a question I don’t know how to answer, her stubbornness and refusal to take a shower or change her clothes or not wanting to go to the Center.  All I want is some peace and quiet.

Farther Into The Thin Places

August 12, 2012

Yesterday morning when my Mom got up, she asked me who she is.  It happened a couple of weeks ago and it really surprised me.  I know she doesn’t always know who I am, but she has always known who she was.  She is the most confused in the morning when she wakes up; later in the morning it is better but not always.  The other thing she said was she didn’t think she was in the right place – where the right place I have no clue.  I told this is her place right now and after going through a couple of times, she seemed okay.  At least she didn’t do her “never mind, forget it” routine.  There have been days when she seems to have one foot in this world and one in the next world, what my sister Candy calls the thin places.  Every day Mom goes more and more into the thin places – she wants so much to be on the other side with Dad, Josie the cat and her family – she is scared they really aren’t there.  My friend Monty told me they are preparing a place for Mom and because she will be confused at the beginning, she will have guides to help her through the transition.  I have told her this, she wants to believe it so much but I don’t know what scares her so much.

I have watched this very independent (and stubborn) woman become so tentative and afraid, asking permission to do anything.  She once said she used up all her courage to fly from Connecticut to California to marry my Dad right after Pearl Harbor.  I wonder if that was really true.  What I also realize is that is one of my childhood programs.  We were always taught to ask permission first before doing anything – except my younger sister was the one who at time would announce she had done such and so.  Where did that come from?  How did I miss that?  I definitely was brought up to be a good girl, follow the rules, ask permission, etc.  No wonder I have had a hard time trusting myself and following my heart.  I didn’t listen to my heart because it was different from what I learned at home.  Let’s face it, I wanted to be accepted, acceptable while not having the courage of my convictions.  Ye Gods & Little Fishes!  At 65 I am still that way in some things but I am breaking out of my shell and taking risks.  Well, risks for me.

I also notice how negative Mom has become.  She doubts everything and is convinced the worst possible scenario will come to pass.  She just left for a walk with the new caregiver and I said she didn’t need to take the house key, that I would be here and the house would be open.  She doesn’t think so.  Not sure what she thinks will happen but I suspect having the door key makes her feel more secure.  I am not going to try to persuade her to leave the key here, it isn’t going to make a difference but she will feel better having it.  I have grown up with that negativity from the time I can remember, but it has intensified so much the past few years.  I really see now how much I have absorbed that thinking for most of my life, now I am finally much more aware and recognize more often.  No, it’s isn’t all the time but I have also changed my thinking.  In the morning before I get out of bed, I thank and give gratitude to God, my Spirit Guides, Angels and Master Teachers for all I have been blessed with – comfortable and uncomfortable.    I will admit it isn’t whole-hearted yet – those uncomfortable  ones aren’t quite there yet.  I am a work in progress.

I also notice Mom tends to mumble and talk about things that make no sense, not even sure they make sense to her.  More and more I don’t know what she is trying to say, only that she gets frustrated and upset she can’t get the words out.  Then she goes straight to “never mind, it doesn’t matter!”.  She talks about other people in the house, I don’t know if they live here or just visit or if she sees them or only senses them.  She is confused a lot about who I am, yesterday she thought I was her sister.  She thinks Eddie is her father, my father, her husband – I wonder if it is because he is the only male she sees consistently.

I often wonder where my Mom is and who is this confused and scared woman living with us.  She looks like Mom but not much resemblance other than that.

I Swear, There Is A Funny Side

July 17, 2012

I know I have written about the frustrations, fears, etc. about being here for my Mom with her dementia and macular degeneration – those who are dealing with it know that only too well.  But it also has its funny side, sometimes Mom comes out with the oddest things, some from so far in left field I wonder where it comes from.  I keep reminding myself to just see it as normal rather than overreacting.  As someone in my caregivers; group said, sometimes it is a bit macabre humor.

I was getting out of the shower to dry myself one morning and Mom came to the doorway.  First she had to find out if it was me or someone else, but that was quickly established.  However, her next question was so unexpected – she wanted to know if I was a man or a woman.  I know she has macular degeneration, but she was only about 3 feet from me.  Go figure.

The other morning she was up when I was making breakfast, so I made her breakfast too.  As we were eating, she wanted to know if it was all right for me to do it,  Would I get in trouble for doing it?  I told her there was no problem, the Breakfast Police don’t come to our house.

One evening a few weeks ago, Eddie went through the living room to go into our office.  Mom saw him go by and knew his name is Eddie, but she asked what his last name was.  I said it was Kaplanian – to which she replied “They’re all Kaplanians!”.

She has mentioned several times her first husband – I thought my Dad was her first and only one, the one with whom she had three daughters.  Unfortunately she isn’t able to really describe him, so it is a mystery to me.  Then the other night my older sister called to talk with Mom, but later Mom said she talked with a male cousin whom she had spoken to in a long time.  Then she said she spoke with her son, someone she has mentioned before – could he be the son with the first husband?

She thinks there are men living downstairs, sometimes women are in the house.  Lately she asks about the little girls, if they have gone to school – I think that maybe my  sisters and I when we were growing up.  Now there is an older man – he’s not very nice – and a young boy whom she really likes.  When she asks me if I have seen any of these people, I can honestly say I haven’t.  There are times when the house is beginning to get a little crowded.

When I come home and am going into my office, Mom is standing 3 feet from me and asks “Are you here?” – I don’t quite know what to answer.  I would have thought it was obvious because I was right there in front of her.  The other question she keeps asking is “Are you all right?”.  I have learned to tell her I am doing very well because apparently she has been worried about me since I broke my hip – except she has asked that question over and over for as long as I can remmember.

The other night I swear we were in a pinball machine and someone pulled the handle so Mom went from me to Eddie and back again several times.  I was talking to my sister in the kitchen while Eddie was watching tv in the bedroom – she may have even done  a couple of trips into the office to see who was there.  It’s a strange world she lives in and a wild ride at times – they say life is the journey, not the destination and to enjoy the ride.  Hmm, I don’t like roller coasters and there are times when it feels like I am riding one.

Some days it is easy to laugh things off and just be; other times it is very very difficult to deal with it – plus all the other times in between.  At leas there are things that happen or are said that strike me funny – though I do have an oddball sense of humor.  Plus, I would rather laugh than be irritated and tear my hair out.  I will continue to keep track of the funny side of dementia and give you more examples as they come up.

If I don’t laugh about this or any of the other things I am dealing with, I would go nuts.  I don’t fancy a padded room any time soon.

The Journey Is Coming To An End

July 9, 2012

It is very difficult to watch my Mom go deeper and deeper into dementia – frustrating, irritating, sad, upsetting, maddening all rolled into one.  I think I have finally accepted that she very seldom knows who I am, though I am someone familiar to her.  Tonight was “one of those afternoons into evening” – several times I wanted to shout at her to give it a rest, yet I know she is not doing it on purpose.  We go through the 50 questions, mostly on the same subject until I could scream.  But she just couldn’t hold on to the answer – I can’t imagine how that feels to her.  She keeps saying she is stupid because she can’t say what she wants to say – what she is thinking can get to her mouth to express it because there are short circuits and blocks  on the pathway from her brain to her mouth   She definitely isn’t a stupid woman; on the contrary, she is very intelligent and perceptive but her circuits don’t allow her to talk the way she wants.  She keeps asking why she can’t say what she wants to say – would she understand if I told her?  Quite often now she seems to mumble things that don’t make sense, still working on a good response for that.

She constantly asks “Are you all right?” – it is not just since I broke my hip, it has been like that since we moved here 10 years ago.  She will ask many times a day, but now I understand that telling her I am fine, I am getting better every day is the better answer than “Will you stop asking me that every five minutes!”.  Since  we have caregivers every day, now it is constant asking asking asking who is coming.  I tell her no one is coming tonight, Kathy will be here tomorrow at 9 and your ladies will be here at noon.  That is for Mondays.  She has lately been asking me where my sister who was here is now, or about the man in the other room, or the other people in the house.

She keeps standing in the doorway as I am ready to go out of the room – believe me, I watch where I am stepping because I fell and broke my hip by not watching where I was stepping.  She thinks everything has to do with her, if I am on the phone she keeps coming in to listen so I have to tell her it is my phone call.  Tonight I was talking to my younger sister and she must have come in at least 4 or 5 times.  It didn’t seem to matter she spoke with her first, chances are Mom didn’t remember.  Then as we were watching tv in our room, Mom must have come in at least 9 or 10 times about who’s coming, am I all right? and some she mumbled things we didn’t really understand.  I invited her twice to join us but she wouldn’t – maybe she was restless or bored.

She doesn’t want to be here, she misses my Dad and their cat Josephine.  My sisters and I have reassured her they are waiting for her – she keeps asking how can she get there.  She misses Dad so much and doesn’t like the life she has right now.  As Kathy put it, she has a life here she can’t live any more.  Sometimes she will talk about slitting her throat or ask me how can she kill herself, but I don’t think she would do that, no matter how desperate she gets.  She wants to leave this world and be with Dad and Josie but she is scared – my opinion is she is scared it isn’t true, that they are there waiting for her.  I talked with my friend Monty to ask if he had any insight – he told me they are  preparing a place for her and that there will be guides to help her through because she will be confused.  I told Mom about it and her question was “Are you lying?”.  I said I wasn’t lying at all – she wants to believe it but she isn’t quite ready to allow herself to believe.    I want to fix it and make it all better, but I know I can’t.  It hurts to see her this way but I also know she has to work through it herself.

She keeps asking to go home, yet she doesn’t know where home is or how to describe it.  She keeps asking how she can get out of here – yet once in a while she wants to know if she can spend the night.  She thinks she has only been here for a short time – could it be a result of three weeks away while the bathroom was redone?

I am working on finding her a place to live because she is now at the point she needs more care than we can give her.  It seems to be taking a long time to put things together – people on holiday, not receiving faxes, etc.  I keep telling myself there is a reason it is working out this way, I just don’t know the reason.  It may be clearer in time, right now I need to get the appointment set for the assessment to see if she qualifies for the program.  We’ll see what happens after that.  I will admit that both Eddie and I are getting to the very end our rope, we have no privacy, no home of our own and not much of a home life.

Clearing The Garden

July 1, 2012

This has been quite an interesting week.  Last Friday John Van Zanten  of Van Zanten Landscapes came by with his crew and spent from 7 a.m. to almost 4 p.m.  chopping down the jungle.  Unfortunately the yard had become so overgrown that the blueberries were being squeezed unmercifully by blackberry vines, holly and the wisteria.  Meanwhile, the raspberries were lost in the tall grass.   When they emerged into the daylight, they were small and rather sparse but with berries on their branches waiting to ripen.  The pink dogwood was buried in tall grass with a small alder tree growing right next to it – that bed is clear and the Fontinia stump has some sprouts coming out of the top.  We have a big stickery bush on the corner of the front window that grows so tall it blocks the view – so does the forsythia at the other end.  For the moment it is trimmed way back but will be growing again with more energy.  It is  quite a difference now – they even unearthed the McIntosh apple tree by the hedge – poor thing was so overwhelmed it kept sending branches farther out into the yard for sun.  Now it has sun but the back part is all bare.

John and his crew came back on Monday to do some more clearing – there is still a third in the back by the street that needs clearing out as well.  I asked Nancy of Artistic Garden Concepts to come by and give me some ideas about plants for the bare beds.  I want good looking plants that are very low maintenance and she had some great ideas.  So we will work on a 2 stage plan – otherwise it is  a lot in one go.  So I will check with John to see how soon we can replant with low vibernum and a couple of other lower growing ground covers.

While they were out clearing the undergrowth, I was in the process of clearing out and organizing the office.  I accomplished a lot in those two days, though it didn’t really show on the surface.  Then I had my haircut much shorter than usual – I like not having to fuss with hair dryer, styling and hairspray.  It may not be as short as Judi Dench or Jamie Lee Curtis, but not a whole lot longer.  I have spent the last year or so clearing out old stuff inside me with my deep tissue massage – would one say it is a good spring cleaning all around?

We are in the process of finding a place for my Mom to live, she is at the point where she is very, very confused and really needs more care.  She is getting close to the late stages of dementia and we want to do the best for her and for us.  We found a place in West Seattle that has Adult Family Homes and Assisted Living.  I am not sure which will work for Mom.  There is also a Day Center for them to go during the day, plus she will have a doctor, OT, PT, Social Worker, dentist, etc. to make sure she is well  and is at  her best.  Once I get the paperwork in – the young woman was on holiday last week so I have to give it to her on Monday.  There will be a case worker to assess what suits Mom, then they will recommend places for us to see.  We will probably choose two and show those to Mom to see which she likes.  Kathy has been laying the groundwork and has been an enormous help and has also become a really good friend.

I will admit to being close to the end of my rope, even with caregivers every day.  If she is up for breakfast with me, we go through 50 questions and after the 8th time she has asked a question, I am ready to tear my hair.  She can be stubborn, ornery and contrary at times, other times she is quite cooperative.   She wants to leave this life so much, but she is scared and confused – she is scared there won’t be anything after she is gone.  She so wants to believe that Dad and Josephine the cat will be there to greet her, but isn’t ready to let go of this life she doesn’t want to live any more.  It upsets and hurts me to see her like that, I want to fix it and make it all better – but I know I can’t.  I reassure her they are waiting for her – I asked Monty on Friday if he could see anything for Mom and he said they are preparing a place for her with guides to help her through the transition.  I believe it but even when I tell Mom that, she doesn’t believe it.  Is it too good to be true for her, therefore it must not be true?  Maybe deep down she doesn’t feel worthy.

Someone told me awhile back that this is the hardest part – no kidding!  I have been going to caregiver’s support groups and I realize I am quite fortunate that Mom is not violent, doesn’t wander off, isn’t incontinent or swears at everyone.  She sleeps a lot and that also helps too.  But it is difficult to see the woman who has been such a big part of my life not recognize me except occasionally and is as confused and unsure as a 3 or 4 year old.  When she is finally able to truly let go and join my Dad, it will be upsetting for me.  I also will know she is no longer confused and scared, instead she will be free, light and filled with joy.

I have been feeling that all this clearing out is also in preparation of all of us going into a new life.  Hanging on to the past and all the “stuff” from it  means there is no space for new things to come in – I am working on that just in my own life as well.


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