Posts Tagged ‘Mother’

Farther Into The Thin Places

August 12, 2012

Yesterday morning when my Mom got up, she asked me who she is.  It happened a couple of weeks ago and it really surprised me.  I know she doesn’t always know who I am, but she has always known who she was.  She is the most confused in the morning when she wakes up; later in the morning it is better but not always.  The other thing she said was she didn’t think she was in the right place – where the right place I have no clue.  I told this is her place right now and after going through a couple of times, she seemed okay.  At least she didn’t do her “never mind, forget it” routine.  There have been days when she seems to have one foot in this world and one in the next world, what my sister Candy calls the thin places.  Every day Mom goes more and more into the thin places – she wants so much to be on the other side with Dad, Josie the cat and her family – she is scared they really aren’t there.  My friend Monty told me they are preparing a place for Mom and because she will be confused at the beginning, she will have guides to help her through the transition.  I have told her this, she wants to believe it so much but I don’t know what scares her so much.

I have watched this very independent (and stubborn) woman become so tentative and afraid, asking permission to do anything.  She once said she used up all her courage to fly from Connecticut to California to marry my Dad right after Pearl Harbor.  I wonder if that was really true.  What I also realize is that is one of my childhood programs.  We were always taught to ask permission first before doing anything – except my younger sister was the one who at time would announce she had done such and so.  Where did that come from?  How did I miss that?  I definitely was brought up to be a good girl, follow the rules, ask permission, etc.  No wonder I have had a hard time trusting myself and following my heart.  I didn’t listen to my heart because it was different from what I learned at home.  Let’s face it, I wanted to be accepted, acceptable while not having the courage of my convictions.  Ye Gods & Little Fishes!  At 65 I am still that way in some things but I am breaking out of my shell and taking risks.  Well, risks for me.

I also notice how negative Mom has become.  She doubts everything and is convinced the worst possible scenario will come to pass.  She just left for a walk with the new caregiver and I said she didn’t need to take the house key, that I would be here and the house would be open.  She doesn’t think so.  Not sure what she thinks will happen but I suspect having the door key makes her feel more secure.  I am not going to try to persuade her to leave the key here, it isn’t going to make a difference but she will feel better having it.  I have grown up with that negativity from the time I can remember, but it has intensified so much the past few years.  I really see now how much I have absorbed that thinking for most of my life, now I am finally much more aware and recognize more often.  No, it’s isn’t all the time but I have also changed my thinking.  In the morning before I get out of bed, I thank and give gratitude to God, my Spirit Guides, Angels and Master Teachers for all I have been blessed with – comfortable and uncomfortable.    I will admit it isn’t whole-hearted yet – those uncomfortable  ones aren’t quite there yet.  I am a work in progress.

I also notice Mom tends to mumble and talk about things that make no sense, not even sure they make sense to her.  More and more I don’t know what she is trying to say, only that she gets frustrated and upset she can’t get the words out.  Then she goes straight to “never mind, it doesn’t matter!”.  She talks about other people in the house, I don’t know if they live here or just visit or if she sees them or only senses them.  She is confused a lot about who I am, yesterday she thought I was her sister.  She thinks Eddie is her father, my father, her husband – I wonder if it is because he is the only male she sees consistently.

I often wonder where my Mom is and who is this confused and scared woman living with us.  She looks like Mom but not much resemblance other than that.

The Journey Is Coming To An End

July 9, 2012

It is very difficult to watch my Mom go deeper and deeper into dementia – frustrating, irritating, sad, upsetting, maddening all rolled into one.  I think I have finally accepted that she very seldom knows who I am, though I am someone familiar to her.  Tonight was “one of those afternoons into evening” – several times I wanted to shout at her to give it a rest, yet I know she is not doing it on purpose.  We go through the 50 questions, mostly on the same subject until I could scream.  But she just couldn’t hold on to the answer – I can’t imagine how that feels to her.  She keeps saying she is stupid because she can’t say what she wants to say – what she is thinking can get to her mouth to express it because there are short circuits and blocks  on the pathway from her brain to her mouth   She definitely isn’t a stupid woman; on the contrary, she is very intelligent and perceptive but her circuits don’t allow her to talk the way she wants.  She keeps asking why she can’t say what she wants to say – would she understand if I told her?  Quite often now she seems to mumble things that don’t make sense, still working on a good response for that.

She constantly asks “Are you all right?” – it is not just since I broke my hip, it has been like that since we moved here 10 years ago.  She will ask many times a day, but now I understand that telling her I am fine, I am getting better every day is the better answer than “Will you stop asking me that every five minutes!”.  Since  we have caregivers every day, now it is constant asking asking asking who is coming.  I tell her no one is coming tonight, Kathy will be here tomorrow at 9 and your ladies will be here at noon.  That is for Mondays.  She has lately been asking me where my sister who was here is now, or about the man in the other room, or the other people in the house.

She keeps standing in the doorway as I am ready to go out of the room – believe me, I watch where I am stepping because I fell and broke my hip by not watching where I was stepping.  She thinks everything has to do with her, if I am on the phone she keeps coming in to listen so I have to tell her it is my phone call.  Tonight I was talking to my younger sister and she must have come in at least 4 or 5 times.  It didn’t seem to matter she spoke with her first, chances are Mom didn’t remember.  Then as we were watching tv in our room, Mom must have come in at least 9 or 10 times about who’s coming, am I all right? and some she mumbled things we didn’t really understand.  I invited her twice to join us but she wouldn’t – maybe she was restless or bored.

She doesn’t want to be here, she misses my Dad and their cat Josephine.  My sisters and I have reassured her they are waiting for her – she keeps asking how can she get there.  She misses Dad so much and doesn’t like the life she has right now.  As Kathy put it, she has a life here she can’t live any more.  Sometimes she will talk about slitting her throat or ask me how can she kill herself, but I don’t think she would do that, no matter how desperate she gets.  She wants to leave this world and be with Dad and Josie but she is scared – my opinion is she is scared it isn’t true, that they are there waiting for her.  I talked with my friend Monty to ask if he had any insight – he told me they are  preparing a place for her and that there will be guides to help her through because she will be confused.  I told Mom about it and her question was “Are you lying?”.  I said I wasn’t lying at all – she wants to believe it but she isn’t quite ready to allow herself to believe.    I want to fix it and make it all better, but I know I can’t.  It hurts to see her this way but I also know she has to work through it herself.

She keeps asking to go home, yet she doesn’t know where home is or how to describe it.  She keeps asking how she can get out of here – yet once in a while she wants to know if she can spend the night.  She thinks she has only been here for a short time – could it be a result of three weeks away while the bathroom was redone?

I am working on finding her a place to live because she is now at the point she needs more care than we can give her.  It seems to be taking a long time to put things together – people on holiday, not receiving faxes, etc.  I keep telling myself there is a reason it is working out this way, I just don’t know the reason.  It may be clearer in time, right now I need to get the appointment set for the assessment to see if she qualifies for the program.  We’ll see what happens after that.  I will admit that both Eddie and I are getting to the very end our rope, we have no privacy, no home of our own and not much of a home life.

More Lessons From My Mom

January 29, 2012

I have mentioned in passing that my Mom has  macular degeneration and dementia ( I will not  give either one capital letters) and that it has been a very stressful situation for all of us.  My husband and I live with Mom  in the house where I grew up – childhood triggers all over the place.  The change has been gradual until the past few months, suddenly it seems to have speeded up and now it is hard for Mom to remember who I am.  I think I have come to terms with it, I feel so in the middle of it all that it is hard to be objective.  I also realized it is stirring up all  kinds of uncomfortable things as well, but I am now at a point where I can say “I’m not thrilled to deal with all this but let’s do it and clean it out”. It is uncomfortable, but then again, all the work with Ike Pono and Debye and her deep tissue massage have all been uncomfortable.  However, I am still here, I have survived all of it and it feels good to have things cleared out finally.  Yes, I know there is still a lot more to unearth, yet I am not as afraid to look it in the face as I was.

I have “kinda” known some things I learned growing up, it is only now that I see how it has operated in my adult life.  One of them is not asking for help – it is imposing on people.  I was talking to my older sister the other night and mentioned that – boy, does she know what I mean!  Her comment was”Ditch it girl!”.  I have had to ask for help because all of this has made me realize I am in over my head.  I haven’t felt I have a handle on what todo, where to go , etc.  I contacted the Alzheimer’s Association and they have given me a place to start.  I have been to a couple of support groups for caretakers, plan to go again next month and also to understand I have to take care of myself as well as Mom.  There are legal and financial ramifications, plus now I need to make sure there is someone with Mom all the time.  That way I can go out and do things for myself and my sanity, yet she isn’t left all alone when I do go.  My life has become narrower and narrower because of that.  But I do have to take care of myself and what’s left of my business – not sure how all of this will come together yet.

This not asking for help, doing it alone – we very seldom went to the doctor, Mom took care of us at home.  As I look back on my years of RA while we were moving around, I realize I was doing it on my own, not asking anyone for help except maybe the doc or the OT.  So I didn’t really have anyone to talk to about it until I started volunteering at the Connecticut Chapter of the Arthritis Foundation.  I met other people who understood, but a lot of what I did was  not about me but more about giving basic info on arthritis and what the Foundation offered.  Also, not talking about it because “other people really aren’t interested” as well as “you don’t tell other people your business” – now I know other people have dealt with the same thing or similar and they are there to support me.  I have gotten so much support from friends and business associates – last week I talked about it in my breakfast group and found myself breaking down.  I hadn’t planned on that happening, I just wanted to thank people for their support.  That just brought up another one – be stoic and don’t show emotion – we do have British ancestry so I come by the “stiff upper lip” honestly.

These days I have a very wobbly upper lip, I seem to be crying a lot.  Now I have always cried easily, I always thought it was a sign of weakness.  I cry when I am mad, when I am sad, when I am depressed, frustrated, fed up with pain – the list goes on and on.  Now when I talk about Mom and the things I am dealing with, I am a puddle so quickly ; I find when I am doing work with the massage, more puddles. I am wondering if that is just releasing and that stuffed down emotion and stuff that I didn’t feel qualified or eligible to express at the time.

We were also taught that when someone offers you something, you politely decline.  Never did understand that one.  I also found myself picking apart a compliment, as if I was worthy or deserving of a compliment.  It took a long time to be able to just say Thank You when someone told me how well I looked or how amazing something was that I had done.  I understand now that I am giving a gift in receiving a gift, whether it is a compliment or a physical object.  Sometimes it takes awhile for the message to finally get through and I know that I know it.

I know my parents did the best they could – they always made us feel loved and wanted, taught us integrity, honestly, gave us discipline and boundaries we could count on and they always did things as a family.  As I grew up and learned how other families operated – I just assumed everyone was like us – I began to appreciate and understand how blessed the three of us are.  It is a big job to raise a child and I knew I didn’t have the patience to do it – thank goodness I married a man who also didn’t want children.  My hat is off to people who do raise their children well.  So now I am a parent after all.

The Party Continued

October 2, 2011

For a birthday celebration we didn’t really plan too much, it turned out to be quite busy.  Sunday was a quiet day for all of us except Eddie – he went up early to the Future of Flight for the delivery of the 1st 787 and I didn’t see him until Tuesday afternoon.  Our neighbor Luzma next came by in the afternoon to ask if we liked ribs – we said yes and thought no more about it.  Candy and Ellen went for a walk and a while later Luzma appeared with ribs, potato salad, baked beans, BBQ sauce and corn muffins. When Ellen and Candy came back, the five of sat down for a delicious and messy meal.  We all had a good time and really didn’t want much to eat later.

Monday it was pouring all day – no big surprise in Seattle.  We all go on the theory “If you wait for a sunny day to do things, you won’t be doing very much”.  Unless it is blowing a gale or torrential rain, we go out and do whatever the weather.  Ellen invited us all out for lunch at Anthony’s Home Port in Des Moines. We had a table by the window looking out over the marina – wonder why there wasn’t much activity.  We were warm and dry, enjoying a lovely lunch and each others company while the rain came down.  A very delightful and unexpected treat.  We came home and decided to watch a video in the afternoon – Ellen had given Mom one about living with bears.  It was a 3 part – we saw the first two parts Spring and Summer.  It was delightful and quite amazing that in the back woods of Minnesota, researchers working to conserve  and protect black bears were able to be among them without a problem.  Gordon Buchanan was able to film the bears up close once they  recognized him.  He followed one particular young mother and her cub during filming, as the young came out of the den for the first time until it was time to hibernate for the winter.

We had a light dinner and watched the 2nd part – it was Wednesday afternoon by the time Mom and I watched the  3rd part.  Then Ellen and Candy had to pack and get ready to leave in the morning.  I had a breakfast and Showcase that morning, I was able to do it between 2 sisters.  Ellen needed to be at the airport by 7, the breakfast was at 8:30 at the race track and at 9:30 the Showcase was open.  So I had 2 hours to visit as many promotional suppliers I could – 2 hours of walking and standing on concrete really started to get to my knees and feet.  I didn’t have time to meet several suppliers I wanted to talk with, but I did pretty well for 2 hours.  I left around 11:30, was home by 12 – Candy and Mom had some alone time, so it worked out well.  We took her to the airport and dropped her at Departures and then we came home – we were both quite tired after a delightful weekend of birthday.  I was about to have a lie down around 1 or so and suddenly Eddie appeared, tired as well but had a great time.  The delivery went well even though Monday it poured, but a good time was had by all.

It has taken a few days for me to rest a bit, I was too tired to sleep at times and that doesn’t help.  The next three days I was up early, 2 networking meetings and Friday I saw the study doctor.  Looks like I may be coming to the end of the line – I am to go off the medical food and supplement for 6 weeks and then see him to let him know if there is any difference.  I was having trouble with the new capsule, my intestines didn’t seem to want to accept it gracefully.  I started it a year ago and I will say I am doing better than when I started.  I will also admit it is hard to remember back that far and how I felt – maybe it is true that pain has no memory.  I will continue doing a shake in the morning, I just have to decide what to put in it.  I have liquid calcium and liquid Vit D, I also can put in some yogurt, banana, maybe some whey protein powder, ground flax seed or chia seeds.  I bought some almond butter to put in a teaspoon or so, maybe a tablespoon.  We’ll see how it goes.  Instead of milk, I might do coconut milk.  I will file a report  in 6 weeks with the results.

As I was driving home from Gig Harbor – an hour away – I was listening to the alternative talk station KKNW.  They were talking about IDA, something new to me.  Who is IDA?  IDA is a what, a non-profit for Invisible Disabilities Association.  For those with chronic illness and similar conditions, most often we don’t look as if anything is wrong.  We look perfectly healthy and people don’t really understand the difficulties we have.  I feel I have been beating  my head against the wall for 40 years and now I have found a group who has been able to put it all together.  Hurray!!!!!!!!!  I have put up a profile in the autoimmune Disease group – I was amazed at all the different groups they have.  Check it out atwww.invisibledisabilitycommunities.org


Through The Eyes Of A Quilter

Musings by Ami Simms (As an Amazon Associate, I earn from qualifying purchases.)

Angelswhisper2011

Me and my Granny

TWO Spoiled Cats

Angel Sammy and Teddy Make TWO

Northwest Outdoors

This WordPress.com site is the cat’s pajamas

countingducks

reflections on a passing life

Universal Cosmic Consciousness

All experiences are the journey.

Tofino Photography

Professional Wildlife, Landscape and Seascape Photography

Rocking This Illness: My Story of Life with Behcet's Disease

Navigating Life with an Illness that Doesn't Define Me

I used to be indecisive...

...but now I'm not so sure

livelovebegreen

making my world greener, one day at a time

LEANNE COLE

Trying to live a creative life

Wiley's Wisdom

Joy: From the Ground Up

StickertyClick.com

" Creativity is a drug that i can't live without' - Cecil B. Demille StickertyClick, Destination for all of your edgy creative needs.

brent's iPhone & japan

what am i up to...

TwoCatsViews

Life as Seen by Hemingway and Steinbeck

Kalliope Amorphous

Art blog of Kalliope Amorphous

The Jiggly Bits

...because life is funny.

All Flared Up: An Arthritis Blog

Living Rather Than Wallowing